With the lead line of “There is more to my acromegaly than just numbers on a page” comes a new informational website from the Chiesi Global Rare Diseases patient support group. Rethink Acromegaly is a
Reading about each of these famous giants prompted me to dig a bit more to see if there was anything new to report on the genetics of pituitary adenomas. Here’s the latest.
Today’s podcast is about our super athlete friend Risa August and her new book about her acromegaly experience, her life, and her 1,800 mile ride from Canada to Mexico.
San Diego, California-based Crinetics Pharmaceutical announced today that its novel investigational drug paltusotine maintained IGf-1 levels in patients who switched from monthly injectables
This year, the Acromegaly Community, a US-based advocacy organization for patients and families dealing with the disease, is organizing regional meetings. These regional meetings are a change from prior years, where the community presented a
After a few virtual meetings these past years, I was back at UC Berkeley/UCSF’s joint medical program for an in-person gathering with some of the brightest and most engaged medical students on the planet. This is, without a doubt, one of my favorite things to do since founding PWN, and I look forward to it every year.
Meet Laura Cheng. Laura is a nurse. She has acromegaly. She works as a clinical nurse and is currently enrolled in the endocrine program at Duke University.
The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news. If you have acromegaly, have a family member that suffers
Today we present an excellent discussion with Dr. Alan Krasner, Chief Medical Officer for Crinetics Pharmaceuticals. Dr. Krasner speaks to PWN about two very important drugs currently under development.
This book, edited by world-renowned clinicians and editors Dr. Manish Aghi and Dr. Lewis Blevins, delivers a guide to medical decision-making on diagnosing and treating acromegaly.
Acroline™ is a series of four brochures created by Pfizer in collaboration with an international panel of people with acromegaly, acromegaly support groups, and health psychologists. This series of supportive guides and tools are designed to help keep your life on track and live well with acromegaly.
We take advantage of Acromegaly Day, coming up on November 1, to highlight resources from industry partners. The Pfizer Patient Affairs Liaisons (PALs) connect patients and caregivers affected by rare conditions with programs and information. PALs work with