Last year, Got Diabetes Insipidus group director Pat Gildroy was asked to be the patient representative for the development and distribution of the DImond Patient Survey. Pat reached out to PWN for help in generating responses
Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients’ access to healthcare. Our brief survey elicited information from respondents on their experiences and attitudes towards obtaining healthcare via telemedicine. Dr. Blevins shares the findings
Joining a new drug trial, for example, is an action that can benefit many affected with a disease, particularly with a rare disease, where finding enough people for an adequate sample is very challenging.
Your insights matter. From J D Faccinetti – co-founder and chief editor – In the awareness business coming up with new, fresh, creative ideas is essential to get your message across, particularly these days when breaking
Our telemedicine series continues with this podcasts on the results of our recent survey with physicians, primarily endocrinologists. In it, Dr. Lewis Blevins shares the results and explores physicians attitudes and perspectives. This is the
From the desk of Lewis S Blevins Jr. M.D. cofounder – Telemedicine is an emerging concept that provides unique opportunities in patient care and at the same time challenges the established framework and structure of
Leading Argentine patient advocacy group APEHI (Ayuda a Pacientes con Enfermedades Hipofisarias) -loosely translated “Help for Patients with Pituitary Disease” – recently conducted a study to gain more knowledge about people with pituitary disease in
We recently did a survey to explore opinions and attitudes about laboratory testing prior to a visit with your doctor. The reason: patients are increasingly requesting laboratory tests results be obtained in advance of their
This podcast focuses on the results of our latest Pituitary World News survey on Cyclical Cushing’s Syndrome. Dr. Blevins offers his views and a very interesting, highly educational discussion on this condition. Look for our
From Linda M. Rio and Jorge D. Faccinetti – In December 2016 into early January 2017 Pituitary World News asked viewers to respond to a simple online survey. We have done this in the past
From J D Faccinetti, cofounder – Sharing experiences can provide tremendous support to others dealing with similar issues. The simple fact of knowing you are not alone is very helpful and reassuring. Every so often
Our discussion today focuses on the results of our recent acromegaly survey. This survey was intended for those patients who have been diagnosed with acromegaly based on clinical biochemical and radiographic features.