With the lead line of “There is more to my acromegaly than just numbers on a page” comes a new informational website from the Chiesi Global Rare Diseases patient support group. Rethink Acromegaly is a
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
When 304 people, including 128 living with acromegaly, gather to talk about the disease, good things can happen.
In January 2021, the Acromegaly Community, a US-based patient advocacy organization, organized and participated in an externally lead patient focus drug development meeting. The EL-PFDD initiative is a Food and Drug Administration (FDA) effort to systematically
Acromegaly: the last 30 years
In this Podcast, Dr. Blevins gives us a perspective of the last 30 years on the developments in this field. Like many other conditions, the advances in therapy, imaging, surgery techniques, diagnostic testing, and clinical knowledge have been nothing short of remarkable.
Canada to Mexico: Rare pituitary disease patient bikes the 1845-mile Pacific Coast Highway
Music Composed and Produced by, MusicWorksFoundry(TM) (ASCAP). All Rights Reserved.
A new drug for acromegaly: an insider’s look at the clinical trial
Music Composed and Produced by, MusicWorksFoundry(TM) (ASCAP). All Rights Reserved.
A Conversation with Acromegaly Patient Advocates
Music Composed and Produced by, MusicWorksFoundry(TM) (ASCAP). All Rights Reserved.
Big news for acromegaly at Crinetics
From the desk of J D Faccinetti – co-founder – The company recently kicked off a phase 3 trial for their new nonpeptide oral drug for acromegaly and announced the dosing of their first acromegaly
Pregnancy and acromegaly
Acromegaly: what to do with medical treatment during pregnancy and the options available today.
The ride for acromegaly
From Jorge D. Faccinetti – co-founder. With a pituitary disease like acromegaly, Cushing’s, hypopituitarism, and others, or for that matter, any other chronic condition, a big part of the battle is to get up every
Two clinical trials for acromegaly patients: see if you are eligible.
Camurus AB, a pharmaceutical company based in Lund, Sweeden, is currently recruiting volunteers for two clinical trials on the long-term safety and efficacy of an octreotide subcutaneous depot to treat acromegaly. This new treatment offers
Ionis Rare Disease Webinar series on Acromegaly
If you missed this fantastic event, here is an on-demand video you can watch at your leisure. In this second installment of the Ionis’ Rare Disease Webinar series, panelists discuss acromegaly, a condition in which
PFDD: an excellent opportunity for acromegaly patients to get involved
On Thursday, January 21, 2021, there is a virtual FDA Externally Led Patient-Focused Drug Development (PFDD) meeting organized by the Acromegaly Community, a leading patient advocacy organization in the US. To learn more about
A talk with Crinetics Chairman Scott Struthers, Ph.D.
During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder – We recently caught up with Crinetics Pharmaceuticals chairman Dr.