Reading about each of these famous giants prompted me to dig a bit more to see if there was anything new to report on the genetics of pituitary adenomas. Here’s the latest.
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
On November 1 organizations around the world mark Acromegaly Day
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
A note on the importance of awareness
Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor: In the awareness business, coming up with new, fresh, creative ideas is essential to get your message across,
Day time TV tackles acromegaly
Pituitary World News’ main goal is to increase awareness of pituitary disease so more people are diagnosed early and properly. So when a daytime TV program, “The Balancing Act airing on Lifetime TV, tackles the
A tale of two patients: the biology of different pituitary tumors
Two patients with residual pituitary tumors and their unpredictable differences.
Hello, Pills!
With the recent approval and commercial launch of MYCAPSSA®, Chiasma delivers the first and only oral somatostatin analog to treat acromegaly. The research showed 58% of patients maintained normal IGF-1 levels with the new oral
A personal story
From Risa Heidt, triathlete, ironwoman – Marshmallow Clouds – It was September 2018. In preparation for my next big cycling event, a 100-mile Century ride in New Mexico, I rode 50 miles a day for weeks
Help improve acromegaly care around the world.
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
The amazing possibilities of facial recognition technology.
Dr. Manel Puig Domingo, a leading endocrinologist in Barcelona, is doing important work on facial recognition and biometrics to see if this technology is useful in recognizing the early physical changes that occur in Acromegaly.
How do muscles change?
Note: Muscle weakness affects the quality of life in people with acromegaly. Doctora Elena Valassi takes a fascinating look at what happens to muscles when exposed to excess Growth Hormone. Her work is of paramount
The challenge of early diagnosis in acromegaly. We can do this!
Podcast and Survey: Clinical features of acromegaly. In this podcast, Dr. Blevins dives into those clinical features of Acromegaly with a fascinating discussion about symptoms and signs and gives us an unfettered glimpse into the
From Endocrine Web: New Oral Acromegaly Treatment Has No Needles Required
From the editors’ desk – A recent Endocrine Web article by Kimberly B. Bjugstad Ph.D. highlights a new oral octreotide drug for Acromegaly. The drug currently is on an FDA Phase III trial, referred to as OPTIMAL,
Critical COVID-19 information for pituitary patients
We caught up with Dr. Kevin Yuen, medical director of the Barrow Pituitary Center and the Barrow Neuroendocrinology Clinic in Phoenix, Arizona, and Dr. Lewis Blevins Medical Director of the California Center for Pituitary Disorders at