Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
MAR002 is an early, promising development: a new take on a proven strategy, with the potential for stronger IGF-1 control and dramatically less frequent dosing. At the same time, it’s important to keep expectations grounded. The drug is still investigational. It is not approved, not yet available outside clinical trials, and a larger patient study is needed to confirm what the early data suggest.
From the Desk of JD Faccinetti – cofounder. Today in our spotlight section we take a look at The Pituitary Society, one of the leading scientific organization dedicated to the understanding of diseases of the
Margarita Vazques de Amoroso, founder, and president of Faeth in Ecuador sent us some information on their monthly meetings. “We try to get together monthly to share our experiences and knowledge about how to
Daphne Adelman is a clinical nurse specialist at Northwestern University. In her job at Northwestern, she manages and coordinates studies for pharmaceutical and National Institutes for Health-sponsored studies. Daphne’s work focuses on pituitary conditions like
Patient and advocacy organizations around the world are poised to recognize Nov 1 as Acromegaly Day with awareness programs that aim to spread information and awareness on this tough disease. The World Alliance of Pituitary Organizations – WAPO
A current study from Tulane University is attempting to study aspects of the management of acromegaly patients and their perceptions of treatment. The study is being conducted by Dr. Lizheng Shi. Dr. Shi has been
From J D Faccinetti – cofounder – I met Santino Matrundola about a year ago in Vancouver at the Canadian Acromegaly gathering of physicians and patients. We were both asked to present, he his story
From the desk of J D Faccinetti, co-founder – Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness and reduce the time to diagnosis; that’s the best way I
Madrid, Spain: J D Faccinetti reporting. The Spanish Association of People affected by Acromegaly has a full schedule for this week’s conference in Madrid packed with a ton of information and help for patients. “We are delighted
An Opinion and commentary from JD Faccinetti, Chairman, and co-founder. I’ve always been interested in stigma, particularly the stigma associated with pituitary disease, and most notably with acromegaly. Watching the recent HBO special documentary about
From the desk of Dr. Lewis Blevins, co-founder. In today’s podcast, Dr. Blevins discusses his views and experiences with acromegaly and cancer and reviews the latest study on the subject from Denmark. You’ll find a link to
Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22, 2019 in New Orleans, Louisianna. “We are thrilled with this opportunity”, said
A recent New York Times Sunday Magazine article by Lisa Sanders M.D. featured PWN cofounder Lewis Blevins, M.D. and the experiences of one of his patients with an acromegaly diagnosis. The article “The Patient Had