Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
MAR002 is an early, promising development: a new take on a proven strategy, with the potential for stronger IGF-1 control and dramatically less frequent dosing. At the same time, it’s important to keep expectations grounded. The drug is still investigational. It is not approved, not yet available outside clinical trials, and a larger patient study is needed to confirm what the early data suggest.
From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on acromegaly clinical trials. As a patient leader, that runs a
Listen to a discussion of Acromegaly cases that, for a variety of clinical and biochemical reasons, are difficult to discern. Learn about people with definite acromegaly but negative MRI studies. Why are some microadenomas
In a fantastic photo exposition from our friends at the Spanish Acromegaly Association, Raquel Ciriza, and her team illustrate this point with stunning, beautiful visuals of people with Acromegaly. We don’t have to portrait Bond Villains,
Arthropathy is one of the most insidious conditions that can affect people with acromegaly often with challenging quality of life issues. Bone and joint issues are very common. In this enlightening podcast, Dr. Lewis Blevins
I was fortunate to cross paths with Dan Jeffries a few weeks ago and chat with him about his journey with Acromegaly and a few other things. But I’ll let him tell you all about
Studies suggest that sleep apnea is a very common and potentially dangerous condition for people with acromegaly if not properly treated. Today’s podcast presents an engaging look at sleep apnea. PWN cofounders Dr. Lewis Blevins and Jorge
The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans, announced recently it has launched a new fund to provide copayment and premium assistance to Medicare patients living with acromegaly.
PWN is developing a series of podcasts dedicated to sleep apnea, a very common related condition in people with active or controlled acromegaly and other pituitary conditions. Stay tuned for an engaging series of doctor-patient
A conversation with Dr. Scott Struthers, Founder, and CEO of Crinetics Pharmaceutical. These are exciting times in the world of endocrine drug discovery and development, particularly for Acromegaly and Cushing’s patients. In today’s podcast we
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient
Here’s how you can get involved: Awareness is important because it is through awareness that we can influence change. Awareness can have a critical impact on the amount of time it takes to diagnose the
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person