For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
The annual international endocrine conference ENDO 2026, which just ended in Chicago, yielded a ton of information and new developments. We recorded 16 interviews with doctors, scientists, patient advocates, and industry representatives, so please stay tuned; they will be published in the next few days. Great, interesting information to come. Of particular note was Dr. Richard Auchus, Professor of Medicine at the University of Michigan, on the connection between Cortisol, difficult-to-treat hypertension, and type 2 diabetes…
I’m losing my patience with insurance companies and pharmacy benefit managers. They are destroying medicine in their pursuit of wealth for investors and C-suite executives. Many things we do, from diagnostic and laboratory tests to medications, are being denied.
Note form the editor: A while back, we published an article about the fundamental Catch-22 scenario of non-experts using AI to understand medical information. The core insight: to verify whether AI has correctly interpreted its
From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
Here’s how you can help: Help us spread the word. Share the articles, videos and podcasts. Tell your friends, contact your local physicians, dentists, eye centers, hospital and health care clinics and other healthcare professionals
An opinion editorial by Jorge (JD) Faccinetti, co-founder – The popularity of pituitary patient videos telling their stories is evident when you scan the web. Many patients speak about their experiences, positive and negative, with
Having trouble sleeping, or sleeping too much? Pituitary conditions can impact your sleep in many ways. Find out more here.
From Jorge D. Faccinetti, co-founder and chief editor: Why can’t we address some of the most critical issues affecting healthcare today? These are not just other people’s problems. They affect us, our doctors, and our
Today’s podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.
This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases. The primary takeaway: when organizations work together, good things