For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
An opinion editorial by Jorge (JD) Faccinetti, co-founder – The popularity of pituitary patient videos telling their stories is evident when you scan the web. Many patients speak about their experiences, positive and negative, with
From Jorge D. Faccinetti, co-founder and chief editor: Why can’t we address some of the most critical issues affecting healthcare today? These are not just other people’s problems. They affect us, our doctors, and our
Today’s podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.
This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases. The primary takeaway: when organizations work together, good things
Acroline™ is a series of four brochures created by Pfizer in collaboration with an international panel of people with acromegaly, acromegaly support groups, and health psychologists. This series of supportive guides and tools are designed to help keep your life on track and live well with acromegaly.
We take advantage of Acromegaly Day, coming up on November 1, to highlight resources from industry partners. The Pfizer Patient Affairs Liaisons (PALs) connect patients and caregivers affected by rare conditions with programs and information. PALs work with
From the editors: In what is now a yearly occurrence, pituitary groups and industry from all over the world mark October as pituitary awareness month. “The hope in doing this work is to organize a joint effort to maximize the opportunity to talk with a unified voice and increase awareness of pituitary diseases,” said JD Faccinetti, Chairman and chief editor of Pituitary World News.
From the desk of Pituitary World News co-founder J D Faccinetti – In November 2019, we wrote an opinion piece on the current discussion about reclassifying and renaming pituitary adenomas to Pituitary Neuroendocrine Tumors or PitNETs. Well, the rumblings about this change and the arguments from the proponents and opponents to the reclassification are continuing. Read more and vote!
An opinion editorial from J D Faccinetti, co-founder, on listening and interpreting without influencing – Progressive, innovative enterprises have been putting the voice of the consumer front and center in product and communications development since
Thank you to Sharmyn McGraw, Dr. Daniel Kelly, and the experts from the Pacific Neuroscience Institute, along with leading medical experts from Ohio State University Wexner Medical Center, for an excellent discussion and for the
Becoming an empowered patient is an important part of health care. However, managing a care team while living with a rare condition may require some skill, and a toolkit may be helpful in navigating care.
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