The FDA listens to acromegaly patients

April 29, 2024

Today’s podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.  Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA.  

Another excellent resource: “Together for Rare.”

May 1, 2023

This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases. The primary takeaway: when organizations work together, good things

Acroline™ – Helping you live well with Acromegaly

November 9, 2022

Acroline™ is a series of four brochures created by Pfizer in collaboration with an international panel of people with acromegaly, acromegaly support groups, and health psychologists. This series of supportive guides and tools are designed to help keep your life on track and live well with acromegaly.

Patient and advocacy groups observe pituitary awareness month

October 10, 2022

From the editors: In what is now a yearly occurrence, pituitary groups and industry from all over the world mark October as pituitary awareness month. “The hope in doing this work is to organize a joint effort to maximize the opportunity to talk with a unified voice and increase awareness of pituitary diseases,” said JD Faccinetti, Chairman and chief editor of Pituitary World News.

Adenomas or PitNETs: A Pituitary World News opinion editorial

August 29, 2022

From the desk of Pituitary World News co-founder J D Faccinetti –  In November 2019, we wrote an opinion piece on the current discussion about reclassifying and renaming pituitary adenomas to Pituitary Neuroendocrine Tumors or PitNETs. Well, the rumblings about this change and the arguments from the proponents and opponents to the reclassification are continuing. Read more and vote!

A pituitary roundtable worth noting

June 8, 2022

Thank you to Sharmyn McGraw, Dr. Daniel Kelly, and the experts from the Pacific Neuroscience Institute, along with leading medical experts from Ohio State University Wexner Medical Center, for an excellent discussion and for the

Embracing self-advocacy

October 20, 2021

Becoming an empowered patient is an important part of health care. However, managing a care team while living with a rare condition may require some skill, and a toolkit may be helpful in navigating care.