Live talk, session 13 – On this live talk session: a path to better systems

September 13, 2022

On our Live-talk program today, a fascinating, nothing left on the table, discussion about a variety of topics that affect pituitary patients; from access to medication and therapies to problems with social media and misinformation to the complexities of diagnosis and refuting diagnosis to the role of the doctor and the patient to solve many of these challenges.

Adenomas or PitNETs: A Pituitary World News opinion editorial

August 29, 2022

From the desk of Pituitary World News co-founder J D Faccinetti –  In November 2019, we wrote an opinion piece on the current discussion about reclassifying and renaming pituitary adenomas to Pituitary Neuroendocrine Tumors or PitNETs. Well, the rumblings about this change and the arguments from the proponents and opponents to the reclassification are continuing. Read more and vote!

Embracing self-advocacy

October 20, 2021

Becoming an empowered patient is an important part of health care. However, managing a care team while living with a rare condition may require some skill, and a toolkit may be helpful in navigating care.

The dangers and challenges of misinformation

July 30, 2021

From the desk of J D Faccinetti, co-founder, an op-ed – The whole thing about misinformation is that it is dangerous. More specifically, people can get hurt, needlessly sick, and die following internet quacks’ advice. Since

It’s time to fix this mess, but first we have to understand it

May 17, 2021

Pituitary World News has undertaken an initiative to understand and share the complicated issues related to access to medications and costs so pituitary patients can join us in advocating for better healthcare systems. In that mesh of confusion, we find insurance companies, orphan drug manufacturers, specialty pharmacies, pharmacy benefit managers, also known as PBM’s, prescribers, and others that add to the costs and complicate access. The issues get even murkier when considering patients on Medicare, Medicaid, pricing models, and copay requirements.