Advocacy Zone

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

PWN and AWN on the ground at ENDO 2026: What’s new in pituitary and adrenal care

June 29, 2026
Advocacy Zone|Featured|

The annual international endocrine conference ENDO 2026, which just ended in Chicago, yielded a ton of information and new developments. We recorded 16 interviews with doctors, scientists, patient advocates, and industry representatives, so please stay tuned; they will be published in the next few days.  Great, interesting information to come. Of particular note was Dr. Richard Auchus, Professor of Medicine at the University of Michigan, on the connection between Cortisol, difficult-to-treat hypertension, and type 2 diabetes…

Taking the bull by the horns

October 6, 2025
Advocacy Zone|News Feed|
In 2019, when we first featured Risa's Story and plans to ride the Pacific coast highway - with full acromegaly symptoms, by the way - we opened the article with the "Taking the bull by the

You can make a difference!

December 20, 2024
Advocacy Zone|

Here’s how you can help: Help us spread the word.  Share the articles, videos and podcasts. Tell your friends, contact your local physicians, dentists, eye centers, hospital and health care clinics and other healthcare professionals

The sudden hullabaloo for patient videos

November 26, 2024
Advocacy Zone|

An opinion editorial by Jorge (JD) Faccinetti, co-founder  – The popularity of pituitary patient videos telling their stories is evident when you scan the web. Many patients speak about their experiences, positive and negative, with

The FDA listens to acromegaly patients

April 29, 2024
Advocacy Zone|Podcasts|

Today’s podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications.

Another excellent resource: “Together for Rare.”

May 1, 2023
Advocacy Zone|

This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases. The primary takeaway: when organizations work together, good things

Acroline™ – Helping you live well with Acromegaly

November 9, 2022
Advocacy Zone|Industry News|

Acroline™ is a series of four brochures created by Pfizer in collaboration with an international panel of people with acromegaly, acromegaly support groups, and health psychologists. This series of supportive guides and tools are designed to help keep your life on track and live well with acromegaly.