For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
On June 7th the patient support and advocacy group Acromegaly Community hosted another online presentation in its series, “Education by the Experts”. Linda M. Rio, a frequent contributor to PWN, was featured at the Acromegaly Community’s
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media
From the desk of J D Faccinetti Chairman, CEO and chief editor Pituitary World News. We recently published two COVID-19 related articles that focused on subjects that are very much in everyone’s mind. One was
From the desk of Jorge D. Faccinetti, Pituitary World News co-founder – There seems to be a debate going on in the scientific and clinical pituitary world about what to call pituitary adenomas. The simple interpretation
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
Frustrations with the health insurance industry seem to be steadily increasing for patients and physicians alike as politicians use patients as pawns in a sad, ridiculous game without any apparent care to people’s health and well being.
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast
From Linda M. Rio, M.A. – I woke this morning to find an email to me from a parent pleading for my help. This parent has an adult child who had a pituitary tumor removed
There are many things about the work I do for Pituitary World News that are very rewarding and truly enjoyable. Meeting young, bright medical students is one of them. Almost every year since my diagnosis
Breakthrough symptoms & continued growth with controlled igf1. It probably ties into igf1 assays/variables not being reliable or checked as often as needed “Took me 12 years to find someone to remove mine because of