News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Amryt Pharma announced positive results for the MPOWERED phase 3 trial for Mycapssa® oral octreotide for acromegaly patients, in a recent press release. The trial paves the way for the approval of Mycapssa® by the EMA.
Rare disease patient organizations including those representing pituitary patients demanded governmental and health authorities for an immediate resolution on the availability of medications.
If you have been recently diagnosed with acromegaly this flyer provides an excellent resource to better understand the disease. This is a collaborative effort between Pfizer’s global offices in Belgium, several patient advocacy groups, and
Help us increase the medical field’s knowledge of CDI by participating in this short five-minute anonymous survey. An international team of researchers will collect the patient data to help physicians and patients understand how to manage DI
Chile’s Acromegaly support group CORAPEHI focuses on access to Pegvisomant in their struggle to improve access to medication for acromegaly patients in that country. Since 2010 Acromegaly Chile and CORAPEHI (Corporation to Help Patients with
From the editor’s desk – For organizations in the pituitary space, we believe it is critically important to reach out to a broader audience to make the case that these conditions, although classified as rare,
From the desk of J D Faccinetti – co-founder – The company recently kicked off a phase 3 trial for their new nonpeptide oral drug for acromegaly and announced the dosing of their first acromegaly
From Jorge D. Faccinetti – co-founder. With a pituitary disease like acromegaly, Cushing’s, hypopituitarism, and others, or for that matter, any other chronic condition, a big part of the battle is to get up every
Acromegaly patients and healthcare providers worldwide can participate in this survey and provide updated information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
On Cushing’s Day, we share Sharmyn McGraw’s blog on her journey with the disease. From her Blog – “Now twenty-one years in remission from a pituitary adenoma tumor, Sharmyn McGraw, patient advocate, author, artist, and
From the desk of J D Faccinetti, co-founder – The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of pituitary disease through a “mapping project” that asks member organizations to
From our friends at UCSF: Read this great update with links to articles on telemedicine for patients with pituitary disorders, making surgery safer during the Covid-19 pandemic, common mistakes made when treating patients with central hypothyroidism,