Listen to this informative podcast with Ren Renwick, CEO of the Pituitary Foundation in the United Kindom. The foundation is a leading volunteer organization providing a variety of resources and support functions for people with pituitary disease.
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
WAPO Webinars in full swing: now available Dr. Blevins talk on hypercortisolism
March 30, 2023
In 2022 the World Alliance of Pituitary Organizations – WAPO – introduced a series of educational webinars, which are now available on the WAPO website on demand. The series includes presentations from the webinar series as well as those from the organization’s annual conference, also known as the “Summit.” Many of the presentations are also available in Spanish.
2023 WAPO Webinar series
January 20, 2023
The WAPO webinar series presents a series of educational sessions available from the WAPO website. The first in the 2023 series is from Ignas Meškauskas, Health, and Life Coach and founder of a practical wellness practice
Spanish Endocrinology Association holds 63rd congress
November 7, 2022
The Spanish Association of Endocrinology and Nutrition held its 63rd annual congress this October 26 to 29. The Spanish association SEEN (Sociedad Española de Endocrinología y Nutricíon) presented an excellent agenda, including the latest endocrine
Another opportunity to share your opinion
September 12, 2022
COR2ED is an independent medical education company based in Europe. They have partnered with a scientific committee comprising endocrinologists, nurses, and patient advocacy groups (WAPO and INCA) to develop two surveys to explore the injection
Good news from Amryt for acromegaly patients in Europe
March 22, 2022
Amryt Pharma announced positive results for the MPOWERED phase 3 trial for Mycapssa® oral octreotide for acromegaly patients, in a recent press release. The trial paves the way for the approval of Mycapssa® by the EMA.
Ecuador struggles with access to medication
March 13, 2022
Rare disease patient organizations including those representing pituitary patients demanded governmental and health authorities for an immediate resolution on the availability of medications.
A global acromegaly resource from Pfizer and WAPO
November 2, 2021
If you have been recently diagnosed with acromegaly this flyer provides an excellent resource to better understand the disease. This is a collaborative effort between Pfizer’s global offices in Belgium, several patient advocacy groups, and
Help the medical field learn more about Central Diabetes Insipidus
October 28, 2021
Help us increase the medical field’s knowledge of CDI by participating in this short five-minute anonymous survey. An international team of researchers will collect the patient data to help physicians and patients understand how to manage DI
On access to Pegvisomant in Chile
October 4, 2021
Chile’s Acromegaly support group CORAPEHI focuses on access to Pegvisomant in their struggle to improve access to medication for acromegaly patients in that country. Since 2010 Acromegaly Chile and CORAPEHI (Corporation to Help Patients with
October is Pituitary Awareness Month.
September 29, 2021
From the editor’s desk – For organizations in the pituitary space, we believe it is critically important to reach out to a broader audience to make the case that these conditions, although classified as rare,
Big news for acromegaly at Crinetics
July 12, 2021
From the desk of J D Faccinetti – co-founder – The company recently kicked off a phase 3 trial for their new nonpeptide oral drug for acromegaly and announced the dosing of their first acromegaly
The ride for acromegaly
June 8, 2021
From Jorge D. Faccinetti – co-founder. With a pituitary disease like acromegaly, Cushing’s, hypopituitarism, and others, or for that matter, any other chronic condition, a big part of the battle is to get up every