News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
One of the most valuable things you can do to help the pituitary community is share your own experience. What you have lived through helps others understand the realities of living with acromegaly, or any other disease. It helps clinicians see challenges that never show up in a lab result and helps make sure that programs and services are built on patients needs. Taking part in research and using your voice is one of the most direct ways to do that.
From the editor’s desk – For organizations in the pituitary space, we believe it is critically important to reach out to a broader audience to make the case that these conditions, although classified as rare,
From the desk of J D Faccinetti – co-founder – The company recently kicked off a phase 3 trial for their new nonpeptide oral drug for acromegaly and announced the dosing of their first acromegaly
From Jorge D. Faccinetti – co-founder. With a pituitary disease like acromegaly, Cushing’s, hypopituitarism, and others, or for that matter, any other chronic condition, a big part of the battle is to get up every
Acromegaly patients and healthcare providers worldwide can participate in this survey and provide updated information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
On Cushing’s Day, we share Sharmyn McGraw’s blog on her journey with the disease. From her Blog – “Now twenty-one years in remission from a pituitary adenoma tumor, Sharmyn McGraw, patient advocate, author, artist, and
From the desk of J D Faccinetti, co-founder – The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of pituitary disease through a “mapping project” that asks member organizations to
From our friends at UCSF: Read this great update with links to articles on telemedicine for patients with pituitary disorders, making surgery safer during the Covid-19 pandemic, common mistakes made when treating patients with central hypothyroidism,
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
Our friend and contributor, Dr. Chris Yedinak, Assistant Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular at the NW Pituitary Center, Oregon Health & Sciences University, Portland OR, in conjunction with an international
Grzegorz Rosiak, M.D., an interventional radiologist from Warsaw Medical University, sends us a recently published article, “Percutaneous Adrenal Gland Thermal Ablation,” an alternative Cushing syndrome treatment. You can read more about thermal ablation of the adrenal gland
With the upcoming WAPO Summit slated for this October 3, we thought we’d give our audience around the world more information about the Summit and the organization itself. This podcast will give you a rundown