The latest WAPO Blogs and Vlogs series features professor Márta Korbonits, from the Barts and London School of Medicine at Queen Mary University of London. Dr Korbonits is a world renowned authority in the genetics
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Big news for acromegaly at Crinetics
July 12, 2021
From the desk of J D Faccinetti – co-founder – The company recently kicked off a phase 3 trial for their new nonpeptide oral drug for acromegaly and announced the dosing of their first acromegaly
The ride for acromegaly
June 8, 2021
From Jorge D. Faccinetti – co-founder. With a pituitary disease like acromegaly, Cushing’s, hypopituitarism, and others, or for that matter, any other chronic condition, a big part of the battle is to get up every
Understanding the pandemic’s effect on acromegaly
May 8, 2021
Acromegaly patients and healthcare providers worldwide can participate in this survey and provide updated information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
How Cushing’s Disease Helped Shape Sharmyn’s Wonderful Life
April 7, 2021
On Cushing’s Day, we share Sharmyn McGraw’s blog on her journey with the disease. From her Blog – “Now twenty-one years in remission from a pituitary adenoma tumor, Sharmyn McGraw, patient advocate, author, artist, and
A view of pituitary disease across the globe
February 28, 2021
From the desk of J D Faccinetti, co-founder – The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of pituitary disease through a “mapping project” that asks member organizations to
The Road to MYCAPSSA: A Conversation with Dr. Bill Ludlam
January 26, 2021
We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss his career and his work in rare diseases. Dr. Ludlam played
News from the California Center for Pituitary Disorders at UCSF
January 25, 2021
From our friends at UCSF: Read this great update with links to articles on telemedicine for patients with pituitary disorders, making surgery safer during the Covid-19 pandemic, common mistakes made when treating patients with central hypothyroidism,
On November 1 organizations around the world mark Acromegaly Day
October 30, 2020
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
You can help!
October 28, 2020
Our friend and contributor, Dr. Chris Yedinak, Assistant Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular at the NW Pituitary Center, Oregon Health & Sciences University, Portland OR, in conjunction with an international
Alternative Cushing’s syndrome treatment
October 14, 2020
Grzegorz Rosiak, M.D., an interventional radiologist from Warsaw Medical University, sends us a recently published article, “Percutaneous Adrenal Gland Thermal Ablation,” an alternative Cushing syndrome treatment. You can read more about thermal ablation of the adrenal gland
What is the World Alliance of Pituitary Organizations?
September 28, 2020
With the upcoming WAPO Summit slated for this October 3, we thought we’d give our audience around the world more information about the Summit and the organization itself. This podcast will give you a rundown
Help improve acromegaly care around the world.
June 25, 2020
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your