News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Amryt Pharma announced positive results for the MPOWERED phase 3 trial for Mycapssa® oral octreotide for acromegaly patients, in a recent press release. The trial paves the way for the approval of Mycapssa® by the EMA.
WAPO’s Global Pituitary Voice – April 2020 edition – is now available to download. This newsletter is being released in the midst of the COVID-19 pandemic, which forced the postponement of the WAPO Summit to
In a press release today, San Diego, California based Crinetics Pharmaceuticals reports positive results from their Phase Two trial of PALTUSOTINE (the former CRN00808). This is a new oral medication to treat acromegaly and neuroendocrine
Recordati Rare Diseases, Inc., based in Lebanon, NJ, has recently acquired the rights to SIGNIFOR® LAR and the FDA approval for ISTURISA®(osilodrostat). Both products treat pituitary diseases. SIGNIFOR LAR, a “2nd generation” somatostatin analog given
This article caught my attention since so much of what we do today is based on big data. This coronavirus situation is no different. In the article John P.A. Ioannidis – professor of medicine, of
At the risk of adding to the Coronavirus news frenzy we’re experiencing, I thought this piece from Gil Bashe, a health communication writer, deserved to be noted. His article points to the substandard job the health
A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest project. He told me he started AcroTales to encourage people to share their
This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder at Crinetics Pharmaceutical. Our discussion spotlights new drugs for acromegaly, Cushing’s,
As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions. If you have acromegaly, have a family member that suffers from the disease, or you are a healthcare
The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs, preferences, and attitudes, and to develop insights that would result in
Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. [maxbutton id=”2″ ] Through WAPO, patient advocacy organizations share information, best practices
From the desk of Jorge D Faccinetti, co-founder – The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their annual conference – Congreso, in Spanish – this past October in Bilbao,
A commentary from Dr. Lewis S Blevins Jr. co-founder – I was recently asked if I felt that we would ever be able to use stem cells to regenerate the pituitary gland. Frankly, the answer is