In 2022 the World Alliance of Pituitary Organizations – WAPO – introduced a series of educational webinars, which are now available on the WAPO website on demand. The series includes presentations from the webinar series as well as those from the organization’s annual conference, also known as the “Summit.” Many of the presentations are also available in Spanish.
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
3. Giving patients a place at the table
The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs, preferences, and attitudes, and to develop insights that would result in
World Alliance of Pituitary Organizations: December 2019 Newsletter
Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. [maxbutton id=”2″ ] Through WAPO, patient advocacy organizations share information, best practices
PWN at Spain’s 2019 Endocrinology Society Congress
From the desk of Jorge D Faccinetti, co-founder – The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their annual conference – Congreso, in Spanish – this past October in Bilbao,
Will we ever be able to use stem cells to regenerate the pituitary gland?
A commentary from Dr. Lewis S Blevins Jr. co-founder – I was recently asked if I felt that we would ever be able to use stem cells to regenerate the pituitary gland. Frankly, the answer is
Raising GP’s Awareness in Diagnosing Cushing’s
From the Pituitary Foundation in the UK, a Cushing’s awarenesses initiative targeting primary care physicians (GP’S). For October Cushing’s awareness activities, the Pituitary Foundation in the UK has launched a campaign focused on GP’s (General Practitioners).
From the Spanish Association of People Affected by Acromegaly
November 1 is World Acromegaly Day! This fun video from the Asociacion Española de Afectados por Acromegalia is a great way to explain the causes and get more details on this disease. Excellent work from
WAPO participates in Cushing’s Patient Journey Summit 2019
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
From Spain: A story of a pharmacist and acromegaly
From the desk of J D Faccinetti – cofounder. We often scan the world for compelling stories that broaden the awareness of pituitary disease and do it well. This one comes from Raquel Ciriza, the president
Important healthcare public policy work in Ecuador
This initiative comes from Margarita Vasquez, from FAETH (Fundacion de Apoyo a Enfermos con Transtornos Hipofisiario), an Ecuadorian foundation and WAPO member, that supports patients with pituitary disease. In this initiative, the rare disease community in
Alert others of your condition to keep you safe
From our friends at the Pituitary Foundation in the UK comes this significant initiative to keep pituitary patients safe by alerting others to their condition. These new products include alert wristbands and a case to carry
Cortisol Matters! Learn why.
Why is it important to know about the symptoms of hypercortisolism and its clinical consequences? And why is early detection so critical? The answers to these vital questions are highlighted in a new web resource
From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast