News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
WAPO Blogs and Vlogs offers an excellent resource for information related to pituitary diseases, including general medical information as well as the recordings of webinars and presentations. Search through the WAPO library for updated information
This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder at Crinetics Pharmaceutical. Our discussion spotlights new drugs for acromegaly, Cushing’s,
As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions. If you have acromegaly, have a family member that suffers from the disease, or you are a healthcare
The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs, preferences, and attitudes, and to develop insights that would result in
Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. [maxbutton id=”2″ ] Through WAPO, patient advocacy organizations share information, best practices
From the desk of Jorge D Faccinetti, co-founder – The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their annual conference – Congreso, in Spanish – this past October in Bilbao,
A commentary from Dr. Lewis S Blevins Jr. co-founder – I was recently asked if I felt that we would ever be able to use stem cells to regenerate the pituitary gland. Frankly, the answer is
From the Pituitary Foundation in the UK, a Cushing’s awarenesses initiative targeting primary care physicians (GP’S). For October Cushing’s awareness activities, the Pituitary Foundation in the UK has launched a campaign focused on GP’s (General Practitioners).
November 1 is World Acromegaly Day! This fun video from the Asociacion Española de Afectados por Acromegalia is a great way to explain the causes and get more details on this disease. Excellent work from
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
From the desk of J D Faccinetti – cofounder. We often scan the world for compelling stories that broaden the awareness of pituitary disease and do it well. This one comes from Raquel Ciriza, the president
This initiative comes from Margarita Vasquez, from FAETH (Fundacion de Apoyo a Enfermos con Transtornos Hipofisiario), an Ecuadorian foundation and WAPO member, that supports patients with pituitary disease. In this initiative, the rare disease community in
From our friends at the Pituitary Foundation in the UK comes this significant initiative to keep pituitary patients safe by alerting others to their condition. These new products include alert wristbands and a case to carry