News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Amryt Pharma announced positive results for the MPOWERED phase 3 trial for Mycapssa® oral octreotide for acromegaly patients, in a recent press release. The trial paves the way for the approval of Mycapssa® by the EMA.
From the Pituitary Foundation in the UK, a Cushing’s awarenesses initiative targeting primary care physicians (GP’S). For October Cushing’s awareness activities, the Pituitary Foundation in the UK has launched a campaign focused on GP’s (General Practitioners).
November 1 is World Acromegaly Day! This fun video from the Asociacion Española de Afectados por Acromegalia is a great way to explain the causes and get more details on this disease. Excellent work from
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
From the desk of J D Faccinetti – cofounder. We often scan the world for compelling stories that broaden the awareness of pituitary disease and do it well. This one comes from Raquel Ciriza, the president
This initiative comes from Margarita Vasquez, from FAETH (Fundacion de Apoyo a Enfermos con Transtornos Hipofisiario), an Ecuadorian foundation and WAPO member, that supports patients with pituitary disease. In this initiative, the rare disease community in
From our friends at the Pituitary Foundation in the UK comes this significant initiative to keep pituitary patients safe by alerting others to their condition. These new products include alert wristbands and a case to carry
Why is it important to know about the symptoms of hypercortisolism and its clinical consequences? And why is early detection so critical? The answers to these vital questions are highlighted in a new web resource
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast
From The French Acromegaly patient organization, Acromegales, pas seulement – This is an excellent awareness video from French acromegaly patient organization “Acromegales, pas Seulement” on the symptoms of acromegaly. It is a campaign by the association APS
From Sandra Mesri, president of Apehi, (The Argentine Asociation for Patients Affected by a Pituitary Disorder) comes a new promotional video. Sandra tells us their objective is to get the word out with relevant images
From the desk of JD Faccinetti cofounder – This article on the Brazilian Medical Council recent decision to approve telemedicine services comes to us from Nathalia Kneipp in Brazil. The article was recently published in
Margarita Vazques de Amoroso, founder, and president of Faeth in Ecuador sent us some information on their monthly meetings. “We try to get together monthly to share our experiences and knowledge about how to