The latest WAPO Blogs and Vlogs series features professor Márta Korbonits, from the Barts and London School of Medicine at Queen Mary University of London. Dr Korbonits is a world renowned authority in the genetics
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Alert others of your condition to keep you safe
August 5, 2019
From our friends at the Pituitary Foundation in the UK comes this significant initiative to keep pituitary patients safe by alerting others to their condition. These new products include alert wristbands and a case to carry
Cortisol Matters! Learn why.
July 31, 2019
Why is it important to know about the symptoms of hypercortisolism and its clinical consequences? And why is early detection so critical? The answers to these vital questions are highlighted in a new web resource
From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders
June 24, 2019
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast
A picture is worth a thousand words. No translation needed!
May 30, 2019
From The French Acromegaly patient organization, Acromegales, pas seulement – This is an excellent awareness video from French acromegaly patient organization “Acromegales, pas Seulement” on the symptoms of acromegaly. It is a campaign by the association APS
Acromegaly patient organization in Argentina launches new disease awareness video
February 7, 2019
From Sandra Mesri, president of Apehi, (The Argentine Asociation for Patients Affected by a Pituitary Disorder) comes a new promotional video. Sandra tells us their objective is to get the word out with relevant images
Brazil adopts telemedicine strategy to get specialized medicine to remote areas
February 7, 2019
From the desk of JD Faccinetti cofounder – This article on the Brazilian Medical Council recent decision to approve telemedicine services comes to us from Nathalia Kneipp in Brazil. The article was recently published in
News from Chile and Ecuador
January 24, 2019
Margarita Vazques de Amoroso, founder, and president of Faeth in Ecuador sent us some information on their monthly meetings. “We try to get together monthly to share our experiences and knowledge about how to
From Spain: The “Look at your Photos” campaign
November 16, 2018
A campaign from Spain to raise awareness of acromegaly is up for an award. It is very nicely done! For those of you who speak Spanish, the stories are poignant. We’re working on our Spanish
From the UK Dan Jeffries talks about acromegaly
November 16, 2018
A great video from UK contributor Dan Jeffries to mark Acromegaly Day November 1, 2018. Learn more about Dan here.
On November 1, organizations around the world mark Acromegaly Day
October 30, 2018
Patient and advocacy organizations around the world are poised to recognize Nov 1 as Acromegaly Day with awareness programs that aim to spread information and awareness on this tough disease. The World Alliance of Pituitary Organizations – WAPO
September 2018 WAPO newsletter
October 1, 2018
The World Alliance of Pituitary Organizations’ September 18 newsletter Edition 7, “Global Pituitary Voice” is now available. Read about activities from pituitary patient organizations around the world, share ideas, and learn about upcoming events. Download it
A discussion on Patient Registries and the European ERCUSYN project
October 1, 2018
Don’t miss this informative webinar from The World Alliance of Pituitary Organizations – WAPO – on ‘Patient registries’, and The European Register on Cushing’s Syndrome – ‘ERCUSYN’. The webinar will be moderated by WAPO members Sheila