News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
In 2022 the World Alliance of Pituitary Organizations – WAPO – introduced a series of educational webinars, which are now available on the WAPO website on demand. The series includes presentations from the webinar series as well as those from the organization’s annual conference, also known as the “Summit.” Many of the presentations are also available in Spanish.
From The French Acromegaly patient organization, Acromegales, pas seulement – This is an excellent awareness video from French acromegaly patient organization “Acromegales, pas Seulement” on the symptoms of acromegaly. It is a campaign by the association APS
From Sandra Mesri, president of Apehi, (The Argentine Asociation for Patients Affected by a Pituitary Disorder) comes a new promotional video. Sandra tells us their objective is to get the word out with relevant images
From the desk of JD Faccinetti cofounder – This article on the Brazilian Medical Council recent decision to approve telemedicine services comes to us from Nathalia Kneipp in Brazil. The article was recently published in
Margarita Vazques de Amoroso, founder, and president of Faeth in Ecuador sent us some information on their monthly meetings. “We try to get together monthly to share our experiences and knowledge about how to
A campaign from Spain to raise awareness of acromegaly is up for an award. It is very nicely done! For those of you who speak Spanish, the stories are poignant. We’re working on our Spanish
A great video from UK contributor Dan Jeffries to mark Acromegaly Day November 1, 2018. Learn more about Dan here.
Patient and advocacy organizations around the world are poised to recognize Nov 1 as Acromegaly Day with awareness programs that aim to spread information and awareness on this tough disease. The World Alliance of Pituitary Organizations – WAPO
The World Alliance of Pituitary Organizations’ September 18 newsletter Edition 7, “Global Pituitary Voice” is now available. Read about activities from pituitary patient organizations around the world, share ideas, and learn about upcoming events. Download it
Don’t miss this informative webinar from The World Alliance of Pituitary Organizations – WAPO – on ‘Patient registries’, and The European Register on Cushing’s Syndrome – ‘ERCUSYN’. The webinar will be moderated by WAPO members Sheila
From the desk of J D Faccinetti, co-founder – Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness and reduce the time to diagnosis; that’s the best way I
Madrid, Spain: J D Faccinetti reporting. The Spanish Association of People affected by Acromegaly has a full schedule for this week’s conference in Madrid packed with a ton of information and help for patients. “We are delighted
From our friends in Ecuador, Margarita Vasques Amoroso sends us information on their monthly meetings. Specialist and patients gather periodically to chat, exchange experiences and valuable information on pituitary disease management. The latest meetings focused