Amryt Pharma announced positive results for the MPOWERED phase 3 trial for Mycapssa® oral octreotide for acromegaly patients, in a recent press release. The trial paves the way for the approval of Mycapssa® by the EMA.
A campaign from Spain to raise awareness of acromegaly is up for an award. It is very nicely done! For those of you who speak Spanish, the stories are poignant. We’re working on our Spanish
A great video from UK contributor Dan Jeffries to mark Acromegaly Day November 1, 2018. Learn more about Dan here.
Patient and advocacy organizations around the world are poised to recognize Nov 1 as Acromegaly Day with awareness programs that aim to spread information and awareness on this tough disease. The World Alliance of Pituitary Organizations – WAPO
The World Alliance of Pituitary Organizations’ September 18 newsletter Edition 7, “Global Pituitary Voice” is now available. Read about activities from pituitary patient organizations around the world, share ideas, and learn about upcoming events. Download it
Don’t miss this informative webinar from The World Alliance of Pituitary Organizations – WAPO – on ‘Patient registries’, and The European Register on Cushing’s Syndrome – ‘ERCUSYN’. The webinar will be moderated by WAPO members Sheila
From the desk of J D Faccinetti, co-founder – Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness and reduce the time to diagnosis; that’s the best way I
Madrid, Spain: J D Faccinetti reporting. The Spanish Association of People affected by Acromegaly has a full schedule for this week’s conference in Madrid packed with a ton of information and help for patients. “We are delighted
From our friends in Ecuador, Margarita Vasques Amoroso sends us information on their monthly meetings. Specialist and patients gather periodically to chat, exchange experiences and valuable information on pituitary disease management. The latest meetings focused
Today we take a quick look at the Pituitary Community South Africa and their efforts to inform and educate on pituitary disease. This an organization dedicated to raising awareness of pituitary tumors and related conditions. Their focus
The Spanish Association of People affected by Acromegaly is holding their annual conference September 15th in Madrid, Spain. Pituitary World News will share experiences and best practices to increase awareness of Pituitary disease worldwide. This
Leading Argentine patient advocacy group APEHI (Ayuda a Pacientes con Enfermedades Hipofisarias) -loosely translated “Help for Patients with Pituitary Disease” – recently conducted a study to gain more knowledge about people with pituitary disease in