News and information for patients.
The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news. If you have acromegaly, have a family member that suffers
Pituitary World News has undertaken an initiative to understand and share the complicated issues related to medication access so patients can join us in advocating for a better system. Don’t miss this engaging podcast.
From the editors: In what is now a yearly occurrence, pituitary groups and industry from all over the world mark October as pituitary awareness month. “The hope in doing this work is to organize a joint effort to maximize the opportunity to talk with a unified voice and increase awareness of pituitary diseases,” said JD Faccinetti, Chairman and chief editor of Pituitary World News.
Last year, Got Diabetes Insipidus group director Pat Gildroy was asked to be the patient representative for the development and distribution of the DImond Patient Survey. Pat reached out to PWN for help in generating responses
In this podcast, we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. For the last five years, she has specialized in neuroendocrine testing and pre-and post-operative care of patients with neuroendocrine and pituitary diseases. Nurses play a critical role in the care of patients with pituitary disease and we are delighted to bring you this wonderful conversation.
After completing the Pacific Coast Highway Canada to Mexico bicycle adventure last year, our friend, and super acromegaly patient, Risa Heidt, is on another adventure hike. This, my friends, is what one would call a
The Corcept Therapeutics “Grace Study”, designed to evaluate the benefits and side effects of a new medication for people with endogenous Cushing’s syndrome, continues full steam ahead. The company recently announced the availability of new
The article, developed by the Pituitary Society and initially published in 2017, lays out the criteria necessary to guide the care of people with pituitary disease. The authors write that, among other things, there are no formal definitions of the criteria needed to be considered genuinely excellent.
Becoming an empowered patient is an important part of health care. However, managing a care team while living with a rare condition may require some skill, and a toolkit may be helpful in navigating care.
From Pituitary World News friend and contributor Dr. Kevin Yuen comes this interesting webinar sponsored by the Pituitary Network Association: Doc, why do I feel lousy after treatment for my pituitary tumor? Dr. Kevin Yuen
Kudos to Pfizer’s new series on patient support. The first one features critical advice on emotional and mental help support! The materials provide valuable content given the importance of mental health issues to acromegaly patients.
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