Conference presentations acromegaly Canada 2022

February 6, 2023

The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news.  If you have acromegaly, have a family member that suffers

Patient and advocacy groups observe pituitary awareness month

October 10, 2022

From the editors: In what is now a yearly occurrence, pituitary groups and industry from all over the world mark October as pituitary awareness month. “The hope in doing this work is to organize a joint effort to maximize the opportunity to talk with a unified voice and increase awareness of pituitary diseases,” said JD Faccinetti, Chairman and chief editor of Pituitary World News.

The world of endocrine nursing: a chat with Dr. Chris Yedinak

June 10, 2022

In this podcast,  we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. For the last five years, she has specialized in neuroendocrine testing and pre-and post-operative care of patients with neuroendocrine and pituitary diseases.  Nurses play a critical role in the care of patients with pituitary disease and we are delighted to bring you this wonderful conversation.

Our friend Risa is on a hike

May 31, 2022

After completing the Pacific Coast Highway Canada to Mexico bicycle adventure last year, our friend, and super acromegaly patient, Risa Heidt, is on another adventure hike. This, my friends, is what one would call a

Excellence matters!

January 18, 2022

The article, developed by the Pituitary Society and initially published in 2017, lays out the criteria necessary to guide the care of people with pituitary disease. The authors write that, among other things, there are no formal definitions of the criteria needed to be considered genuinely excellent.

Embracing self-advocacy

October 20, 2021

Becoming an empowered patient is an important part of health care. However, managing a care team while living with a rare condition may require some skill, and a toolkit may be helpful in navigating care.