The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news. If you have acromegaly, have a family member that suffers
News and information for patients.
From the Cushing’s Support and Research Foundation
From Leslie Edwin, president of the CSRF comes a fun way to raise funds for their important mission with fashion and stylish winter wear. The Cushing’s Support and Research Foundation has created some awareness merchandise,
On November 1 organizations around the world mark Acromegaly Day
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
Alternative Cushing’s syndrome treatment
Grzegorz Rosiak, M.D., an interventional radiologist from Warsaw Medical University, sends us a recently published article, “Percutaneous Adrenal Gland Thermal Ablation,” an alternative Cushing syndrome treatment. You can read more about thermal ablation of the adrenal gland
What is the World Alliance of Pituitary Organizations?
With the upcoming WAPO Summit slated for this October 3, we thought we’d give our audience around the world more information about the Summit and the organization itself. This podcast will give you a rundown
Time to think about mindfulness. It could help.
From the desk of J D Faccinetti, co-founder – I was first seriously exposed to mindfulness a few years ago when an expert on the subject made a remarkable presentation at an international conference in Italy.
A personal story
From Risa Heidt, triathlete, ironwoman – Marshmallow Clouds – It was September 2018. In preparation for my next big cycling event, a 100-mile Century ride in New Mexico, I rode 50 miles a day for weeks
Help improve acromegaly care around the world.
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
Doctors’ Response to June News Linking Cortisol Level to Death Risk with COVID-19
From Leslie Edwin, President of CSRF and PWN Contributor – On June 18, 2020, online medical journal The Lancet Diabetes and Endocrinology published a report about the association between high cortisol and death rate with COVID-19.
Education by the Experts: If you missed the live meeting, here’s there presentation
On June 7th the patient support and advocacy group Acromegaly Community hosted another online presentation in its series, “Education by the Experts”. Linda M. Rio, a frequent contributor to PWN, was featured at the Acromegaly Community’s
The critical need for adrenal insufficiency awareness
If you’d like to learn more about Addison’s disease, here’s a perfect opportunity to do so. The Advanced Practice in Endocrinology Nursing is a comprehensive resource on Adrenal Insufficiency and three chapters from the book are
From Endocrine Web: New Oral Acromegaly Treatment Has No Needles Required
From the editors’ desk – A recent Endocrine Web article by Kimberly B. Bjugstad Ph.D. highlights a new oral octreotide drug for Acromegaly. The drug currently is on an FDA Phase III trial, referred to as OPTIMAL,
From the European Society of Endocrinology: Cushing’s syndrome clinical management guidance during the COVID-19 Pandemic
This is a series of urgent clinical guidance documents on the management of endocrine conditions in the time of COVID-19. This clinical guidance document underwent expedited open peer review by Jérôme Bertherat (Paris, France), André