Pituitary World News participates in the World Orphan Drug Congress

From J D Faccinetti – Chairman and cofounder. Join me at the World Orphan Drug Congress USA. July 11 to 13, 2022, in Boston, USA. This is the most comprehensive event dedicated to orphan drugs. It brings together leading pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers. The conference is a place to meet and brainstorm ways to advance orphan drug development and improve access to life-saving therapies. Many themes and tracks are available to attendees to learn and participate in, including patient data, next-generation therapies, payers, regulatory and clinical development, global market and patient data, pricing and reimbursement, digital health and artificial intelligence, diagnosis, and discovery, to name a few.

I am especially looking forward to participating in the Rare Disease advocacy track. I will be moderating and participating in a roundtable to tackle some of the issues related to advocacy and working collaboratively with the industry. Click here for more information and how to join the roundtable.

Thanks to our participation in the Orpah Drug Congress last year, we are now engaged in collaborative initiatives to benefit patients who share conditions like DI (Diabetes Insipidus), which affects histiocytosis and ECD (Erdheim-Chester disease ), and Pituitary patients alike. 


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