Please participate in this important survey

We are please to help with the distribution of this Healthcare Professional Survey on AVP-Deficiency.  If you are HCP please participate in this important initiative.  There are five short sections and you will only be asked to complete the sections for which you indicate you have responsibility.
  • Demographics (3 min.)
  • Basics about AVP-Deficiency (5 min)
  • Patient Education (5 min)
  • Diagnosis and Outpatient Treatment Decisions (5 min)
  • Hospital Care Decisions (5 min)

Click here to take the survey

In 2022, the Endocrine Society and the global ‘Working Group for Renaming Diabetes Insipidus recommended a name change from diabetes insipidus (CDI) to Arginine Vasopressin Deficiency (AVP-Deficiency, AVP-D) in order to better reflect the condition’s pathophysiology and avoid confusion with diabetes mellitus. But has this change been widely adopted in clinical practice? Is there still confusion between the two terms in 2025? Do healthcare professionals and patients understand how to safely manage AVP-D and desmopressin (and avoid complications like hyponatremia and hypernatremia)?

We wish to gather insights on how AVP-Deficiency is understood, diagnosed, and managed across specialties (both endocrine and non-endocrine). Your participation will help improve patient education and clinical practices for this rare condition. The survey takes just a few minutes, and your responses are anonymous. Your time and effort is greatly appreciated: by answering our survey you will be helping us to improve AVP-D awareness and patient safety!

Click here to take the survey

This is a collaborative project of:
Federation of International Nurses in Endocrinology
Christine Yedinak M.N., F.N.P., D.N.P. from the Oregon Health Sciences University Pituitary Center
Facebook Group: ‘Got Diabetes Insipidus? Got Arginine Vasopressin Deficiency or AVP-Resistance?’
Pat Gildroy, Ph.D. Lead Administrator
World Alliance of Pituitary Organizations (WAPO)
Muriël Marks, Executive Director

© 2025, J D Faccinetti. All rights reserved.

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