A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest project. He told me he started AcroTales to encourage people to share their stories. He writes, “because for anyone with an interest in the condition – those who are recently diagnosed, medics, family members and more – hearing the real-life experiences of people who have come through the other side is not only rewarding but also life-affirming.” We think it’s very well done! So here it is. Take a look! Please share it and participate.
A note from the editors: Awareness is, as you know, one of the critical elements of PWN’s mission. We think well-designed awareness programs, like AcroTales, can help reduce the time it takes to diagnose a tough pituitary disease like acromegaly. Our initiatives aim to educate, inform, and broaden awareness in the general population, and importantly, target critical messages to specialized audiences (physicians, nurses, pharmacists, dentists, advocates, etc.). These targeted programs can make a substantial difference in diagnosis time because they place critically relevant information in front of audiences that can potentially recognize the signs and symptoms earlier. If you have any questions about our initiatives or you’d like to learn more about our awareness strategy please contact us.
About Dan: His book ME, MYSELF, AND EYE, a memoir, is a very funny, light-hearted look at his experiences with two tough diseases. Dan Jeffries’ insightful and hilarious memoir explores what it’s like living with one of the world’s rarest medical conditions — and then finding out you have another one. To read more about Dan’s story or order his memoir visit his website or connect to his Facebook page
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