If you have Cushing’s and take Recordati’s new drug Isturisa, there are two websites, Cushing’s Inspirations and Cushing’s Conversations, where you can share your story and connect with others. The sites are designed to engage and connect people living with Cushing’s disease to share their experiences.
According to the company’s website, Cushing’s Conversations is for people who have been prescribed ISTURISA for Cushing’s disease and may want to connect with others who understand what it’s like and what to expect from treatment with ISTURISA. “Speak to someone who has walked in your shoes, ask questions, and get support.”
Read about Brandy’s story on the Inspiration website. And if you’d like to learn more about Brandy’s compelling experience, listen to this January 2022 Pituitary World News podcast: “A Cushing’s Tale: Two images. Eight months. Same person.”
While we believe these resources and advocacy group support are invaluable for people with all types of pituitary disease, PWN believes you should always talk to your Doctor and health professional team about specific questions regarding your care and the medications you are taking.
© 2023, Pituitary World News. All rights reserved.