Today’s podcast focuses on an opportunity to learn about a group of rare diseases that share a common condition with pituitary disease. Histiocytosis or histiocytic disorders are a group of rare diseases that occur when there is an overproduction of white blood cells known as histiocytes that can lead to organ damage and tumor formation. DI impacts almost 50% of Histiocytosis patients and 35% of pituitary patients. I am pleased to welcome three advocates Deanna Fournier, Executive Director of the Histiocytosis Association; Kathleen Brewer, founder/president of the Erdheim-Chester Disease Global Alliance; and Claudio DiGirolamo, President of the Histiocytosis Association of Canada, to talk about these diseases and their advocacy efforts.
Listen to Dr. Tamara Wexler, a nationally recognized neuroendocrinologist and expert in pituitary dysfunction after a brain injury. She joins Dr. Lewis Blevins in this eye-opening podcast.
I’m happy to welcome Leslie Edwin, president of Cushing’s Support and Research Foundation (CSRF), to our microphones. The CSRF is a leading Cushing’s disease and syndrome patient support organization.
Mental health and emotional wellness are essential topics for pituitary patients, their families, and friends. This on-demand session from last Thursday’s live-talk program focuses on the challenges and opportunities when considering these issues.
Decisions made by doctors and their patients can be some of the most complicated, difficult decisions to make. This session focuses on the factors that influence medical decision-making, the impacts those decisions carry, and how the practical clinical aspects of these choices affect our everyday lives.
Semantics, or by definition, the way we relate to different meanings of words or other symbols, are essential. The words we use to communicate and inform are critical. In our session today, we discuss the semantics of pituitary medicine and underline the importance of describing things accurately.
In this podcast, we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. For the last five years, she has specialized in neuroendocrine testing and pre-and post-operative care of patients with neuroendocrine and pituitary diseases. Nurses play a critical role in the care of patients with pituitary disease and we are delighted to bring you this wonderful conversation.
We caught up with Sheila a few weeks ago at the Acromegaly Community Conference near San Francisco. We had a captivating chat about Mycapssa (oral octreotide) and about Amryt’s start in Dublin, Ireland, just six years ago, its philosophy, brand, and plans.
This session presents more musing based on the actual practice of pituitary medicine, including growth hormone, the recent Covid-19 surge, dexamethasone dose adjustments, an interesting empty sella case with an enlarged pituitary gland, gadolinium, and the connection between mold and pituitary tumors misinformation flying around on the internet, adrenal and pituitary Cushing’s, and a look at telemedicine changes that may not be that good for patients.
Dr. Lewis Blevins talks with guest Dr. Saleh Aldasouqi, Professor, Chief, Division of Endocrinology and Metabolism, and Clinician at Michigan State University Specialty Center, Endocrinology Clinic, about Biotin use and its interference with laboratory tests.
Our live talk session from May 12 is now available on-demand with guests Jill Sisco, president of the Acromegaly Community, and Sharmyn McGraw from the Pacific Neuroscience Institute. This was a fascinating perspective on the challenges and opportunities for patient advocacy programs.
A highly informational “live-talk” session from Dr. Blevins about the indications for pituitary surgery for patients with pituitary adenomas, and critical information for patients with Central Adrenal Insufficiency due to hypothalamic or pituitary disease.