PWN teams up with the Raymond A. Wood Foundation on Craniopharyngioma education

Don’t miss the upcoming  Raymond A. Wood Foundation and Pituitary World News webinar, “A Rational Approach to Management of Craniopharyngioma: Navigating Long-Term Care.  The event is scheduled for May 16, 7:30 pm EDT – 4:30 pm Pacific, featuring Dr. Lewis Blevins and Dr. Sandeep Kunwar from the California Center for Pituitary Disorders at UCSF.  Don’t miss this great event.

Register here.


Surviving or living with craniopharyngioma presents unique challenges that require a comprehensive, long-term approach to care. In this webinar, our panel of experts will delve into practical strategies for treating and managing craniopharyngioma beyond the initial diagnosis. From addressing treatment options to managing the myriad of conditions post-treatment, we’ll provide insights and resources to empower patients and caregivers on their journey. Topics Include: Exploring various treatment approaches, understanding the long-term impact, building your care team, and a Q&A session. Engage with our panelists and get your questions answered live. The event is free, and a recording will be provided to registered attendees. Donations to support our educational initiatives are always appreciated.

The Raymond A. Wood Foundation is a parent and patient-led rare disease patient advocacy organization dedicated to empowering survivors of craniopharyngioma and hypothalamic-pituitary brain tumors. The foundation’s mission is to drive research and advocate for treatment outcomes to improve the quality of life for these survivors.

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