Things to think about: Coming up on Pituitary World News

From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media and the Internet are brimming with an endless parade of experts, some extraordinarily qualified and others not so much, dishing out coronavirus advice. My view on the coverage, particularly on cable news: too much media will drive you nuts. Yes, there is such a thing as too much information, and unfortunately, some of the more important messages are lost in the never-ending blabber. Breaking through the COVID-19 coverage is not easy. The almost unbearable and necessary onslaught of 24/7 all coronavirus news and advice has understandably taken over everyone’s attention. 

The good news is that this hiatus, if you can call it that, gives us some time to catch up on things like a long “to do” list with ideas for articles and initiatives.

These are a few of the items that are coming up in our publishing calendar. So, if any of these subjects spark any interest, here’s your opportunity to chime in.   

    • Second opinions: Should you get one? Some of the best physicians and specialists say you should, always.  
    • The state of Facebook and social media: the good, the bad, and the unacceptable.
    • The significant advantages of patient meetings for learning, sharing, and making friends. How do we make them more effective?
    • How do we reach the general public to broaden awareness of pituitary disease, and why is that so critical to reducing time to diagnosis?
    • Getting ready for doctor’s appointments in the telemedicine age: great advice from the best doctors and nurses around.
    • Related conditions: how they can affect the quality-of-life for pituitary patients
    • Pituitary disease and genetics: what we know and what we don’t know
    • A mess that needs fixing: insurance, copays, Medicare, drug costs, industry assistance, etc. How can we influence change?
    • The unmet needs of the global pituitary patient. The state of care around the world and working with WAPO and international partners to make a difference.
    • Public Policy Advocacy: How can patients get involved?
    • More on new drugs and therapies: what’s in the pipeline?
    • More resources for coping and understanding how to deal with a crisis like COVID-19
    • Bias, misinformation, and the Internet: an ongoing issue in health communications, particularly in rare diseases.

Please share your thoughts, comments, and suggestions at or on our Facebook news feed.  

 Thank you! 

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