This year, the Acromegaly Community, a US-based advocacy organization for patients and families dealing with the disease, is organizing regional meetings. These regional meetings are a change from prior years, where the community presented a national conference every two years. Chicago is the first of three meetings slated for August 26, with additional gatherings planned for Charlotte, NC, on September 16 and Denver, Colorado, on October 14.
Jill Sisco, president of the Acromegaly Community, tells me they are doing these one-day meetings to make it easier for patients who cannot travel to the more significant international biannual meeting. “We bring in a top local endocrinologist and surgeon from the area and provide mental health, nutrition, and other constructive talks,” she said. “We wish to empower patients to be their best advocates. When living with a rare disease, health literacy is one of the most important things you can do to help yourself”, she added.
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