Another excellent resource: “Together for Rare.”

This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases.

The primary takeaway: when organizations work together, good things happen. One apparent positive outcome is more resources for people that need them. The other: common goals result in better, more effective on-target work. For example, more people have access to essential and helpful information, more people are connected, exchange information, more good science-based educational and informational tools become available, and critically, the chances that the problems that continually affect patients can be solved quickly and efficiently increases exponentially. With collaborative approaches, problems can be better understood, defined, and ranked in terms of their importance and ability to affect meaningful change. It’s like a symphony orchestra with lots of talented musicians and fine-tuned instruments, all doing their part and, importantly, playing from the same sheet of music. That’s the only way beautiful music happens!

When we launched PWN in 2014, we decided that our focus would be one of innovation, collaboration, and creativity. This approach allowed us to create, disseminate and amplify information so three critical things would happen:

  • People would have access to more information.
  • People would be diagnosed earlier.
  • People’s quality of life would improve.

Click here for more information on Together for Rare; check out the latest video on Navigating Insurance Issues, and please join in.

Check for more resources here.

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