This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder at Crinetics Pharmaceutical. Our discussion spotlights new drugs for acromegaly, Cushing’s,
As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions. If you have acromegaly, have a family member that suffers from the disease, or you are a healthcare
The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs, preferences, and attitudes, and to develop insights that would result in
From the Desk of Leslie Edwin, President of CSRF and PWN Contributor – We have just completed an intimate, four-video series of first-hand accounts of the Cushing’s journey. They can be found, along with recorded sessions
The second podcast in our continuing series on drug development focuses on the commercial and business aspects of getting a growing company ready for a new drug. Today we talk with Gina Ford, Crinetics’ Vice
An excellent MRI discussion by Dr. Blevins to learn and visualize the anatomy of a pituitary scan. This comparison of two MRI's, done 6 years apart, shows a case of a patient with neuro-sarcoidosis (abnormal
This is the first in a series of 6 podcasts on the ins and outs of drug development. In it, we discuss the journey that a promising molecule takes to develop into a life-saving medication and
We are thrilled to announce that Acromegaly will be the focus of a PFDD (Patient-Focused Drug Development) meeting sponsored by Acromegaly Community Inc., a patient support organization based in the US. The meeting will take
From the editor’s desk: Articles of note for people dealing with pituitary disease. Here are a few information nuggets we thought might be interesting to share; a few things to think about, to chew on,
Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. [maxbutton id=”2″ ] Through WAPO, patient advocacy organizations share information, best practices
From the desk of Jorge D Faccinetti, co-founder – The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their annual conference – Congreso, in Spanish – this past October in Bilbao,
From Jorge D Faccinetti, co-founder – Take the bull by the horns. This is an expression that most likely originated in the American West, where it was a common but dangerous practice to wrestle with