With the lead line of “There is more to my acromegaly than just numbers on a page” comes a new informational website from the Chiesi Global Rare Diseases patient support group. Rethink Acromegaly is a
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
A fascinating chat between a patient and her doctor
Don’t miss today’s podcasts. Sometimes it is through these genuine, unscripted chats that we get insight into what it is like to deal with chronic pituitary disease, in this case, acromegaly. This podcast is no
Pituitary MRI educational series: Double pituitary adenomas in a patient with acromegaly
Developing a new drug for acromegaly
As we reported earlier this year, the acromegaly new drug development world has seen very exciting activity. Several studies are in the pipeline for oral therapies. Today, San Diego California based Crinetics Pharmaceuticals announced a new
Silent Pituitary Adenomas
Our podcast today is on silent pituitary adenomas. This is a fascinating look into these tumors that are thought not to secrete hormones. In the podcast Dr. Blevins discusses the complexities and challenges when dealing
Pegvisomant, glucose metabolism, and acromegaly
In this podcasts, we discuss an important recent meta-analysis study from the University of Rome on the relationship between pegvisomant, a drug used for the treatment of acromegaly, and glucose metabolism. Dr. Blevins also dives into
More info on a current acromegaly drug trial. Learn more here
Antisense drugs are small DNA – or RNA – drugs that are designed to target disease-associated proteins with the objective of slowing or stopping the progression of a disease. Ionis pharmaceuticals, in this new trial, is developing
Can oversharing information be the best medicine?
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious
A picture is worth a thousand words. No translation needed!
From The French Acromegaly patient organization, Acromegales, pas seulement – This is an excellent awareness video from French acromegaly patient organization “Acromegales, pas Seulement” on the symptoms of acromegaly. It is a campaign by the association APS
An amazing diagnosis story
If you don’t think it is essential to let someone know that you suspect they may have a pituitary condition, then please watch this video. The video in this article is an amazing acromegaly diagnosis
The voice of the patient in action.
Breakthrough symptoms & continued growth with controlled igf1. It probably ties into igf1 assays/variables not being reliable or checked as often as needed “Took me 12 years to find someone to remove mine because of
Introducing a comprehensive, outstanding text book for endocrine nursing
This first-ever book published for endocrine nursing provides a comprehensive guide for nurses practicing in any area of endocrinology at any level of expertise. Endocrinology Nursing is a fast-developing specialty with nurses performing advanced roles
Don’t miss the taped presentations from the Acromegaly Community Conference
Watch the taped presentations from the Acromegaly Community Conference! We are thrilled to bring you the taped representations from our live coverage of the Acromegaly Community conference. This years’ conference was packed with great presentations from