New York Times story underlines pituitary patients’ struggles with delayed diagnosis.

A recent New York Times Sunday Magazine article by Lisa Sanders M.D. featured PWN cofounder Lewis Blevins, M.D. and the experiences of one of his patients with an acromegaly diagnosis.

The article “The Patient Had Pain When He Walked, but There Was a More Telling Change” illustrates a narrative that we, unfortunately, hear all too often. People across the globe go undiagnosed for long periods of time; research tells us, on average, 8 to 10 years from the onset of symptoms. In most pituitary diseases, the underlying condition can be successfully treated, but the effect of long delays in diagnosis means that many related conditions – comorbidities to use a medical term – continue to progress causing declines in quality-of-life for many.

It is a poignant article about the realities of life with pituitary disease and chronic conditions, and it clearly illustrates why our mission to increase awareness is so critical.

To read more about Dr. Lewis Blevins and his work with Pituitary World News click here.

Lisa Sanders M.D. is an American physician, medical author, and journalist, she writes the “Diagnosis” column for the New York Times Sunday Magazine. She is an assistant clinical professor of internal medicine and education at Yale School of Medicine.

Illustration by Andreas Samuelsson

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