The Global Genes Rare patient advocacy Summit was held last month in Southern California. The conference was packed with presentations and events that give patients, caregivers, and advocates the tools they need to be better informed and advocate for their respective causes more effectively.
Much like Pituitary World News, Global Genes works to share best practices, promote creativity and innovation, and help form powerful collaborations with potential like-minded partners. The Global Genes staff did a first-rate job with the organization of the event and served up an excellent mix of relevant content and information. We found it a very good forum to meet people and spread the word about our efforts to affect the rate of diagnosis of rare pituitary disease. We look forward to establishing an ongoing collaborative relationship with Global Genes for the benefit of all rare pituitary disease patients and their families.
You can read more about the Global Genes Summit and watch some of the presentations.
In the opening panel discussion, Global Genes’s Medical Scientific Advisory Board discussed current challenges and the optimistic future of rare disease research and treatment.
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