On February 28, many organizations that advocate for cures, therapies, drugs, and critically early diagnosis for the known 7000 plus rare diseases join forces to focus on rare diseases.
We support rarediseaseday.org and the many organizations dedicated to raising awareness and improving life for the 300 million people worldwide living with a rare disease, their families, and caregivers. We proudly join the global effort with hope for the many people worldwide dealing with these rare conditions, some with cures and proper therapies, sadly many without.
On February 28, the rare disease community is coming together for Rare Disease Day to spread hope and solidarity across the world with a global chain of lights. Click here to learn how monuments, offices, schools, and homes are being lit up in the Rare Disease Day colors (green, blue, purple, and pink) to raise awareness for the 300 million people living with a rare disease and their families.
Many of our partners and we believe it is critical to encourage this community to target communications and advocacy tactics with messages that will extend beyond the rare disease community. This must be an effort that extends not for one day but every day of the year.
If you are interested in learning more about extending the Rare Disease message to reach a broader audience, please send us an email message to firstname.lastname@example.org, or contact us through our social media channels.
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