You can help!

Our friend and contributor, Dr. Chris Yedinak, Assistant Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular at the NW Pituitary Center, Oregon Health & Sciences University, Portland OR, in conjunction with an international team of patient advocacy groups for patients with Adrenal Insufficiency, has developed a survey to determine the impact of COVID-19 on people with any form of adrenal insufficiency.

Dr. Yedinak hopes to determine if there is a greater risk of adrenal crisis for people with Adrenal Insufficiency during COVID and if those who contracted COVID are at greater risk of severe reactions or residual effects.

This is a brief survey (11 minutes) to help accomplish this goal and assess if there was any disruption to regular medication supply, the need and frequency of administration of emergency steroid injection, and the challenges this posed.

They hope not only to publish this data to improve care but also to help problem-solve medication supply. They also gather support to approach companies regarding converting the current act-o-vial into a pen device for quick administration of emergency steroids.
The more data they gather, the more accurate the results, so please help by completing this survey.

Click here to start the survey

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