From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
Interview Study. Interested in providing feedback? Read more…
June 19, 2017
A leading research company will be conducting interviews for a usability study with patients diagnosed with acromegaly, carcinoid, and intestinal peptide tumors. The study is interested in your opinion on a future treatment delivery device.
Readers weigh-in on an Affordable Care Act Poll
April 24, 2017
From JD Faccinetti – cofounder – A recent A Monmouth University Polling Institute Survey conducted March 2 – 5 of 810 adults in the US, recently published in Endocrine News, showed that 51% of Americans prefer
So we say, yes. Go for it! Write, debate, react, get out there, get involved!
April 19, 2017
From Jorge D. Faccinetti – cofounder – Someone once noted that if you go to the internet to diagnose yourself, you will come away thinking that you have a life expectancy of three or four
Plans for this year and beyond
March 20, 2017
From PWN founders Dr. Lewis Blevins and Jorge D. Faccinetti – Like all organizations, from time to time, we undertake planning and look to the future to create new innovative ways to get our message
The science of pain
February 14, 2017
From JD Faccinetti – cofounder – Pain, especially chronic pain, is the consummate mind-body disease where sensation and emotion become inextricably intertwined, says the University of California at Davis pain specialist Dr. Scott Fishman. The aches
20 seconds: art, music and medicine
February 8, 2017
A frank, enlighting discussion about 20 seconds that turn your life around or can affect the way you live it. Are there any of those moments in your life? In today’s podcast, we learn about
We want Congress to know more about Acromegaly: Join our effort!
September 1, 2016
An effort is under way to enable Acromegaly patients and doctors to make congress more aware of the needs of patients suffering from this disease. More details on this effort will be forthcoming soon. One
Making a difference
July 28, 2016
Today we begin a new series of feature articles that highlight the tireless work that people do to help others. Here are three amazing human beings: Jill Sisco runs the Acromegaly Community website and
Your gift changes lives!
June 21, 2016
We know that the increased awareness of pituitary disease is directly related to the higher probability of early diagnosis. Early diagnosis means quality of life, and in many cases increased life expectancy. Awareness is power
Diagnosing pituitary disease: patient views and perspectives
April 28, 2016
CLIK HERE TO DOWNLOAD THE “PATIENT VIEWS AND PERSPECTIVES” COMPILATION FROM PITUITARY WORLD NEWS. From Jorge D Faccinetti – co-founder Pituitary World News – Rare diseases, particularly those that come from the pituitary, are
A discussion about purpose
January 19, 2016
In October 2014 Dr. Lewis Blevins, Medical Director of the California Center for Pituitary Disorders and Professor of Clinical Medicine and Clinical Neurological Surgery at the University of California San Francisco, and I founded Pituitary World
Think different
October 10, 2014
First, I know “think different” is bad grammar as it should be “think differently”, but it really says it, doesn’t it? A few years ago, 1998 to be exact, Apple, Inc., (the then computer company)