News and information for patients.
From JD Faccinetti, co-founder and chief editor – I like to ramble, so here it goes. I was musing about how unique and essential this little gland is—the size of a pea, the pituitary runs almost
The perception that scientists and healthcare professionals do not understand what patients go through when dealing with disease, particularly chronic disease, was the focus of a refreshing exercise this past month at Crinetics Pharmaceuticals. To
From the desk of Jorge D Faccinetti, cofounder – One word describes this conference: FUN! The National and International Canadian conference this past September in Toronto, Canada, was not only a good time, but it was
Don’t miss today’s podcasts. Sometimes it is through these genuine, unscripted chats that we get insight into what it is like to deal with chronic pituitary disease, in this case, acromegaly. This podcast is no
In a press release, Strongbridge Biopharma announced comprehensive positive results of their Phase 3 SONICS study of RECORLEVTM (levoketoconazole) for the potential treatment of endogenous Cushing’s syndrome. The results were published online in The Lancet
As we reported earlier this year, the acromegaly new drug development world has seen very exciting activity. Several studies are in the pipeline for oral therapies. Today, San Diego California based Crinetics Pharmaceuticals announced a new
Antisense drugs are small DNA – or RNA – drugs that are designed to target disease-associated proteins with the objective of slowing or stopping the progression of a disease. Ionis pharmaceuticals, in this new trial, is developing
Frustrations with the health insurance industry seem to be steadily increasing for patients and physicians alike as politicians use patients as pawns in a sad, ridiculous game without any apparent care to people’s health and well being.
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious
From Linda M. Rio, M.A. – I woke this morning to find an email to me from a parent pleading for my help. This parent has an adult child who had a pituitary tumor removed
From The French Acromegaly patient organization, Acromegales, pas seulement – This is an excellent awareness video from French acromegaly patient organization “Acromegales, pas Seulement” on the symptoms of acromegaly. It is a campaign by the association APS
There are many things about the work I do for Pituitary World News that are very rewarding and truly enjoyable. Meeting young, bright medical students is one of them. Almost every year since my diagnosis