From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
A muse for Rare Disease Day
February 28, 2021
From Jorge D Faccinetti, co-founder – Today is Rare Disease day. It is encouraging and gratifying to see the many organizations that participate by acknowledging the day. Thank you for mentioning Rare Disease Day in
The Road to MYCAPSSA: A Conversation with Dr. Bill Ludlam
January 26, 2021
We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss his career and his work in rare diseases. Dr. Ludlam played
Telemedicine and COVID-19, insights from our survey
December 28, 2020
Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients’ access to healthcare. Our brief survey elicited information from respondents on their experiences and attitudes towards obtaining healthcare via telemedicine. Dr. Blevins shares the findings
The unrecognized caveats of pituitary conditions
December 20, 2020
From Lewis S Blevins, Jr., M.D. – Today on Dr. Blevins’ Corner: An elderly man underwent removal of the thyroid gland many years ago due to an overactive thyroid as a result of a goiter. He
Should we answer surveys, share our experiences, participate in drug trials, engage with others?
December 14, 2020
Joining a new drug trial, for example, is an action that can benefit many affected with a disease, particularly with a rare disease, where finding enough people for an adequate sample is very challenging.
A talk with Crinetics Chairman Scott Struthers, Ph.D.
December 11, 2020
During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder – We recently caught up with Crinetics Pharmaceuticals chairman Dr.
A discussion on telemedicine and pituitary disease
November 17, 2020
Important changes in telehealth visit regulations provide an excellent opportunity for patients to receive consultations from highly experienced specialists in pituitary disease. Read on! On Monday, November 16, 2020, doctors Lewis Blevins and Sandeep Kunwar
The effects of COVID-19 on pituitary patients’ usage and access to healthcare
November 10, 2020
From J D Faccinetti and Lewis S Blevins, M.D. cofounders – Our focus today is on the effects of COVID-19 on pituitary patients’ access to, and utilization of healthcare as the pandemic continues to affect
On November 1 organizations around the world mark Acromegaly Day
October 30, 2020
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
A note on the importance of awareness
October 30, 2020
Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor: In the awareness business, coming up with new, fresh, creative ideas is essential to get your message across,
Pituitary World News announces the launch of its Spanish edition
August 27, 2020
FOR IMMEDIATE RELEASE: PITUITARY WORLD NEWS ANNOUNCES THE LAUNCH OF ITS SPANISH EDITION – SAN FRANCISCO: August 26, 2020. Co-founders Lewis S. Blevins, Jr. M.D., and J D Faccinetti announced today the launch of Pituitary
Help improve acromegaly care around the world.
June 25, 2020
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your