Acroline™ is a series of four brochures created by Pfizer in collaboration with an international panel of people with acromegaly, acromegaly support groups, and health psychologists. This series of supportive guides and tools are designed to help keep your life on track and live well with acromegaly.
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
The effects of COVID-19 on pituitary patients’ usage and access to healthcare
From J D Faccinetti and Lewis S Blevins, M.D. cofounders – Our focus today is on the effects of COVID-19 on pituitary patients’ access to, and utilization of healthcare as the pandemic continues to affect
On November 1 organizations around the world mark Acromegaly Day
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
A note on the importance of awareness
Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor: In the awareness business, coming up with new, fresh, creative ideas is essential to get your message across,
Pituitary World News announces the launch of its Spanish edition
FOR IMMEDIATE RELEASE: PITUITARY WORLD NEWS ANNOUNCES THE LAUNCH OF ITS SPANISH EDITION – SAN FRANCISCO: August 26, 2020. Co-founders Lewis S. Blevins, Jr. M.D., and J D Faccinetti announced today the launch of Pituitary
Help improve acromegaly care around the world.
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
Education by the Experts: If you missed the live meeting, here’s there presentation
On June 7th the patient support and advocacy group Acromegaly Community hosted another online presentation in its series, “Education by the Experts”. Linda M. Rio, a frequent contributor to PWN, was featured at the Acromegaly Community’s
Things to think about: Coming up on Pituitary World News
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media
A word about comments
From the desk of J D Faccinetti Chairman, CEO and chief editor Pituitary World News. We recently published two COVID-19 related articles that focused on subjects that are very much in everyone’s mind. One was
Tumors and adenomas: “to NET or not to NET.”
From the desk of Jorge D. Faccinetti, Pituitary World News co-founder – There seems to be a debate going on in the scientific and clinical pituitary world about what to call pituitary adenomas. The simple interpretation
WAPO participates in Cushing’s Patient Journey Summit 2019
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
An informal chat about today’s health insurance’s trials and tribulations
Frustrations with the health insurance industry seem to be steadily increasing for patients and physicians alike as politicians use patients as pawns in a sad, ridiculous game without any apparent care to people’s health and well being.
Can oversharing information be the best medicine?
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious