For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
An opinion editorial by Jorge (JD) Faccinetti, co-founder – The popularity of pituitary patient videos telling their stories is evident when you scan the web. Many patients speak about their experiences, positive and negative, with
Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients’ access to healthcare. Our brief survey elicited information from respondents on their experiences and attitudes towards obtaining healthcare via telemedicine. Dr. Blevins shares the findings
From Lewis S Blevins, Jr., M.D. – Today on Dr. Blevins’ Corner: An elderly man underwent removal of the thyroid gland many years ago due to an overactive thyroid as a result of a goiter. He
Joining a new drug trial, for example, is an action that can benefit many affected with a disease, particularly with a rare disease, where finding enough people for an adequate sample is very challenging.
During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder – We recently caught up with Crinetics Pharmaceuticals chairman Dr.
Important changes in telehealth visit regulations provide an excellent opportunity for patients to receive consultations from highly experienced specialists in pituitary disease. Read on! On Monday, November 16, 2020, doctors Lewis Blevins and Sandeep Kunwar
From J D Faccinetti and Lewis S Blevins, M.D. cofounders – Our focus today is on the effects of COVID-19 on pituitary patients’ access to, and utilization of healthcare as the pandemic continues to affect
Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the WAPO Acromegaly Awareness Campaign of 2019 to raise awareness on
Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor: In the awareness business, coming up with new, fresh, creative ideas is essential to get your message across,
FOR IMMEDIATE RELEASE: PITUITARY WORLD NEWS ANNOUNCES THE LAUNCH OF ITS SPANISH EDITION – SAN FRANCISCO: August 26, 2020. Co-founders Lewis S. Blevins, Jr. M.D., and J D Faccinetti announced today the launch of Pituitary
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
On June 7th the patient support and advocacy group Acromegaly Community hosted another online presentation in its series, “Education by the Experts”. Linda M. Rio, a frequent contributor to PWN, was featured at the Acromegaly Community’s
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media