From Jorge D. Faccinetti, co-founder and chief editor: Why can’t we address some of the most critical issues affecting healthcare today? These are not just other people’s problems. They affect us, our doctors, and our
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
WAPO participates in Cushing’s Patient Journey Summit 2019
October 3, 2019
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
An informal chat about today’s health insurance’s trials and tribulations
July 17, 2019
Frustrations with the health insurance industry seem to be steadily increasing for patients and physicians alike as politicians use patients as pawns in a sad, ridiculous game without any apparent care to people’s health and well being.
Can oversharing information be the best medicine?
July 1, 2019
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious
From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders
June 24, 2019
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast
How Can I Find a Mental Health Professional Who Knows About Pituitary Disorders?
June 6, 2019
From Linda M. Rio, M.A. – I woke this morning to find an email to me from a parent pleading for my help. This parent has an adult child who had a pituitary tumor removed
Another year at the UC Berkeley-UCSF joint medical program.
May 12, 2019
There are many things about the work I do for Pituitary World News that are very rewarding and truly enjoyable. Meeting young, bright medical students is one of them. Almost every year since my diagnosis
The voice of the patient in action.
May 7, 2019
Breakthrough symptoms & continued growth with controlled igf1. It probably ties into igf1 assays/variables not being reliable or checked as often as needed “Took me 12 years to find someone to remove mine because of
Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities
April 10, 2019
The Food and Drug Administration (FDA) is hosting a public meeting and an opportunity for public comment on “Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities.” This public meeting is intended to
Misinformation and Bias: Additional Perspectives
April 3, 2019
From the desk of contributor Linda M. Rio, M.A. Marriage and Family Therapist – Pituitary World News editor, J D Faccinetti, recently published an article that hit a nerve with me. I called him to let
The susceptibility of social media groups to believe and advocate for false, erroneous, and sometimes dangerous information.
March 1, 2019
From PWN Co-founder J D Faccinetti – In a recent paper from the National Academies of Science of the United States of America, “The spreading of misinformation online”the authors made quite a dire statement. “Digital
Pituitary patients weigh in on telemedicine’s pros and cons
January 5, 2019
Today we discuss the findings of the recently conducted patient survey on telemedicine. The survey shed some light on critical patient perspectives and perceptions, to help us arrive at some initial conclusions, and identify areas
