From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
Education by the Experts: If you missed the live meeting, here’s there presentation
June 4, 2020
On June 7th the patient support and advocacy group Acromegaly Community hosted another online presentation in its series, “Education by the Experts”. Linda M. Rio, a frequent contributor to PWN, was featured at the Acromegaly Community’s
Things to think about: Coming up on Pituitary World News
April 14, 2020
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media
A word about comments
April 6, 2020
From the desk of J D Faccinetti Chairman, CEO and chief editor Pituitary World News. We recently published two COVID-19 related articles that focused on subjects that are very much in everyone’s mind. One was
Tumors and adenomas: “to NET or not to NET.”
November 17, 2019
From the desk of Jorge D. Faccinetti, Pituitary World News co-founder – There seems to be a debate going on in the scientific and clinical pituitary world about what to call pituitary adenomas. The simple interpretation
WAPO participates in Cushing’s Patient Journey Summit 2019
October 3, 2019
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
An informal chat about today’s health insurance’s trials and tribulations
July 17, 2019
Frustrations with the health insurance industry seem to be steadily increasing for patients and physicians alike as politicians use patients as pawns in a sad, ridiculous game without any apparent care to people’s health and well being.
Can oversharing information be the best medicine?
July 1, 2019
Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine and near-universal availability of information, we need to be conscious
From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders
June 24, 2019
If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and general information. AdrenalNET is an initiative founded in The Netherlands and fast
How Can I Find a Mental Health Professional Who Knows About Pituitary Disorders?
June 6, 2019
From Linda M. Rio, M.A. – I woke this morning to find an email to me from a parent pleading for my help. This parent has an adult child who had a pituitary tumor removed
Another year at the UC Berkeley-UCSF joint medical program.
May 12, 2019
There are many things about the work I do for Pituitary World News that are very rewarding and truly enjoyable. Meeting young, bright medical students is one of them. Almost every year since my diagnosis
The voice of the patient in action.
May 7, 2019
Breakthrough symptoms & continued growth with controlled igf1. It probably ties into igf1 assays/variables not being reliable or checked as often as needed “Took me 12 years to find someone to remove mine because of
Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities
April 10, 2019
The Food and Drug Administration (FDA) is hosting a public meeting and an opportunity for public comment on “Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities.” This public meeting is intended to