From Lewis Blevins, MD, Neuroendocrinologist, Medical Director of the California Center for Pituitary Disorders, Professor of Neurological Surgery at UCSF and PWN cofounder – I’ve seen several patients recently who illustrate one of the basic,
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
Acromegaly Community 2019 National Conference: Save the date!
August 1, 2018
Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22, 2019 in New Orleans, Louisianna. “We are thrilled with this opportunity”, said
Gene Therapy: some answers
July 19, 2018
There is quite a bit of noise out there about Gene Therapy. What it is, how it works, what can it actually do? Some of the information is very good, some, not so good.
Insurance issues and clinical trials
July 6, 2018
From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on acromegaly clinical trials. As a patient leader, that runs a
NORD issues statement regarding insurance copays
June 4, 2018
Today the National Organization for Rare Disorders – NORD – issued a statement and provided a very useful explanation regarding the increasing use of copay accumulator programs in health plans. The NORD statement reads in part: “Recently,
Substandard drugs: In what world is this remotely acceptable?
May 31, 2018
Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News – I recently learned that substandard drugs for acromegaly and other pituitary disorders are alleged to be making their way
PWN and WAPO in push to increase awareness of pituitary disease around the world
May 21, 2018
From JD Faccinetti, Co-founder, Chairman, and CEO – This year we participated in the World Alliance of Pituitary Organizations – WAPO 2018 – conference held recently in Venice, Italy. I’m happy to report on several initiatives. Our
World Alliance of Pituitary Organizations: April 2018 Newsletter
April 14, 2018
The World Alliance of Pituitary Organizations (WAPO) recently published their first newsletter for 2018 with a bunch of interesting pituitary organization’s articles from around the world. Andrei Andrusov, WAPO Chairman of the Board reviews a process
More on Opioids and Pain
April 4, 2018
In a recent podcast on acromegaly and arthritis, we discussed the opioid use crisis currently gripping the United States. The podcast focused primarily on arthropathy, articular, and joint problems associated with acromegaly. These are painful conditions that
PWN technology corner: A look at Telehealth
March 11, 2018
The Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services defines telehealth as the “use of electronic information and telecommunications technologies to support and promote long-distance clinical health care,
Future Doctors – 2018
March 5, 2018
From J D Faccinetti – Cofounder. This is a group of first-year medical students from the UC Berkeley-UCSF Joint Medical Program (JMP). I had the pleasure, as I’ve done every year since 2012, to meet
WAPO and PWN partner for pituitary disease awareness and action around the globe
November 26, 2017
From J D Faccinetti and Lewis S. Blevins, Jr., M.D. Founders – Pituitary World News is pleased to announce is joining the many WAPO members making a difference around the world in the effort to
More form the Canadian National Acromegaly Conference
November 7, 2017
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient