Advocacy Zone

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

PWN and AWN on the ground at ENDO 2026: What’s new in pituitary and adrenal care

June 29, 2026
Advocacy Zone|Featured|

The annual international endocrine conference ENDO 2026, which just ended in Chicago, yielded a ton of information and new developments. We recorded 16 interviews with doctors, scientists, patient advocates, and industry representatives, so please stay tuned; they will be published in the next few days.  Great, interesting information to come. Of particular note was Dr. Richard Auchus, Professor of Medicine at the University of Michigan, on the connection between Cortisol, difficult-to-treat hypertension, and type 2 diabetes…

A big thank you!

August 19, 2018
Advocacy Zone|News Feed|Patients' Corner|

From the desk of JD Faccinetti co-founder – On behalf of Dr. Lewis Blevins and myself, a big thank you to Engage Health for recognizing Pituitary World News as a Rare Disease Difference Maker™. The program recognizes individuals who

Briefings for August 2018

August 9, 2018
Advocacy Zone|Briefings|Patients' Corner|

Interesting information and news for people living and dealing with pituitary conditions.   Leptin: According to experts increasing Leptin sensitivity may help in weight loss. There is still much research needed to understand the puzzle that enables leptin

Gene Therapy: some answers

July 19, 2018
Advocacy Zone|Videos|

There is quite a bit of noise out there about Gene Therapy.  What it is, how it works, what can it actually do?   Some of the information is very good, some, not so good.

More on Opioids and Pain

April 4, 2018
Advocacy Zone|Dr. Blevins Corner|

In a recent podcast on acromegaly and arthritis, we discussed the opioid use crisis currently gripping the United States. The podcast focused primarily on arthropathy, articular, and joint problems associated with acromegaly. These are painful conditions that

PWN technology corner: A look at Telehealth

March 11, 2018
Advocacy Zone|

The Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services defines telehealth as the “use of electronic information and telecommunications technologies to support and promote long-distance clinical health care,

Future Doctors – 2018

March 5, 2018
Advocacy Zone|Patients' Corner|

From J D Faccinetti – Cofounder.  This is a group of first-year medical students from the  UC Berkeley-UCSF Joint Medical Program (JMP).  I had the pleasure, as I’ve done every year since 2012, to meet