For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
This latest initiative from Pfizer’s Patient Affairs Liaisons team makes me think about collaborations and what that means for people with rare pituitary and endocrine diseases. The primary takeaway: when organizations work together, good things
From J D Faccinetti – Cofounder. This is a group of first-year medical students from the UC Berkeley-UCSF Joint Medical Program (JMP). I had the pleasure, as I’ve done every year since 2012, to meet
From J D Faccinetti and Lewis S. Blevins, Jr., M.D. Founders – Pituitary World News is pleased to announce is joining the many WAPO members making a difference around the world in the effort to
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person
From J D Faccinetti – cofounder. In what is sure to be the first of many, Canada’s acromegaly community gathered in Vancouver for a two-day session filled with community, activity, and information. Patients, pituitary specialists,
Why is it important to nonprofits like PWN? Like other nonprofits, Pituitary World News (PWN) relies on grants and individual donations to sustain the educational content brochures, articles, POV’s, opinion editorials, and podcast we continually
A leading research company will be conducting interviews for a usability study with patients diagnosed with acromegaly, carcinoid, and intestinal peptide tumors. The study is interested in your opinion on a future treatment delivery device.
From JD Faccinetti – cofounder – A recent A Monmouth University Polling Institute Survey conducted March 2 – 5 of 810 adults in the US, recently published in Endocrine News, showed that 51% of Americans prefer
From Jorge D. Faccinetti – cofounder – Someone once noted that if you go to the internet to diagnose yourself, you will come away thinking that you have a life expectancy of three or four
From PWN founders Dr. Lewis Blevins and Jorge D. Faccinetti – Like all organizations, from time to time, we undertake planning and look to the future to create new innovative ways to get our message
From JD Faccinetti – cofounder – Pain, especially chronic pain, is the consummate mind-body disease where sensation and emotion become inextricably intertwined, says the University of California at Davis pain specialist Dr. Scott Fishman. The aches
A frank, enlighting discussion about 20 seconds that turn your life around or can affect the way you live it. Are there any of those moments in your life? In today’s podcast, we learn about