For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
Don’t miss the upcoming Raymond A. Wood Foundation and Pituitary World News webinar, “A Rational Approach to Management of Craniopharyngioma: Navigating Long-Term Care. The event is scheduled for May 16, 7:30 pm EDT – 4:30 pm Pacific, featuring Dr. Lewis
The World Alliance of Pituitary Organizations (WAPO) recently published their first newsletter for 2018 with a bunch of interesting pituitary organization’s articles from around the world. Andrei Andrusov, WAPO Chairman of the Board reviews a process
In a recent podcast on acromegaly and arthritis, we discussed the opioid use crisis currently gripping the United States. The podcast focused primarily on arthropathy, articular, and joint problems associated with acromegaly. These are painful conditions that
The Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services defines telehealth as the “use of electronic information and telecommunications technologies to support and promote long-distance clinical health care,
From J D Faccinetti – Cofounder. This is a group of first-year medical students from the UC Berkeley-UCSF Joint Medical Program (JMP). I had the pleasure, as I’ve done every year since 2012, to meet
From J D Faccinetti and Lewis S. Blevins, Jr., M.D. Founders – Pituitary World News is pleased to announce is joining the many WAPO members making a difference around the world in the effort to
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person
From J D Faccinetti – cofounder. In what is sure to be the first of many, Canada’s acromegaly community gathered in Vancouver for a two-day session filled with community, activity, and information. Patients, pituitary specialists,
Why is it important to nonprofits like PWN? Like other nonprofits, Pituitary World News (PWN) relies on grants and individual donations to sustain the educational content brochures, articles, POV’s, opinion editorials, and podcast we continually
A leading research company will be conducting interviews for a usability study with patients diagnosed with acromegaly, carcinoid, and intestinal peptide tumors. The study is interested in your opinion on a future treatment delivery device.
From JD Faccinetti – cofounder – A recent A Monmouth University Polling Institute Survey conducted March 2 – 5 of 810 adults in the US, recently published in Endocrine News, showed that 51% of Americans prefer
From Jorge D. Faccinetti – cofounder – Someone once noted that if you go to the internet to diagnose yourself, you will come away thinking that you have a life expectancy of three or four