From Lewis Blevins, MD, Neuroendocrinologist, Medical Director of the California Center for Pituitary Disorders, Professor of Neurological Surgery at UCSF and PWN cofounder – I’ve seen several patients recently who illustrate one of the basic,
Advocacy Zone
For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
What do you do if faced with this scenario?
October 11, 2017
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person
The Acromegaly Patient community gathers in Vancouver, BC for its first support group conference.
September 29, 2017
From J D Faccinetti – cofounder. In what is sure to be the first of many, Canada’s acromegaly community gathered in Vancouver for a two-day session filled with community, activity, and information. Patients, pituitary specialists,
Net Neutrality: You can help!
July 20, 2017
Why is it important to nonprofits like PWN? Like other nonprofits, Pituitary World News (PWN) relies on grants and individual donations to sustain the educational content brochures, articles, POV’s, opinion editorials, and podcast we continually
Interview Study. Interested in providing feedback? Read more…
June 19, 2017
A leading research company will be conducting interviews for a usability study with patients diagnosed with acromegaly, carcinoid, and intestinal peptide tumors. The study is interested in your opinion on a future treatment delivery device.
Readers weigh-in on an Affordable Care Act Poll
April 24, 2017
From JD Faccinetti – cofounder – A recent A Monmouth University Polling Institute Survey conducted March 2 – 5 of 810 adults in the US, recently published in Endocrine News, showed that 51% of Americans prefer
So we say, yes. Go for it! Write, debate, react, get out there, get involved!
April 19, 2017
From Jorge D. Faccinetti – cofounder – Someone once noted that if you go to the internet to diagnose yourself, you will come away thinking that you have a life expectancy of three or four
Plans for this year and beyond
March 20, 2017
From PWN founders Dr. Lewis Blevins and Jorge D. Faccinetti – Like all organizations, from time to time, we undertake planning and look to the future to create new innovative ways to get our message
The science of pain
February 14, 2017
From JD Faccinetti – cofounder – Pain, especially chronic pain, is the consummate mind-body disease where sensation and emotion become inextricably intertwined, says the University of California at Davis pain specialist Dr. Scott Fishman. The aches
20 seconds: art, music and medicine
February 8, 2017
A frank, enlighting discussion about 20 seconds that turn your life around or can affect the way you live it. Are there any of those moments in your life? In today’s podcast, we learn about
We want Congress to know more about Acromegaly: Join our effort!
September 1, 2016
An effort is under way to enable Acromegaly patients and doctors to make congress more aware of the needs of patients suffering from this disease. More details on this effort will be forthcoming soon. One
Making a difference
July 28, 2016
Today we begin a new series of feature articles that highlight the tireless work that people do to help others. Here are three amazing human beings: Jill Sisco runs the Acromegaly Community website and
Your gift changes lives!
June 21, 2016
We know that the increased awareness of pituitary disease is directly related to the higher probability of early diagnosis. Early diagnosis means quality of life, and in many cases increased life expectancy. Awareness is power