News and information for patients.
From JD Faccinetti, co-founder and chief editor – I like to ramble, so here it goes. I was musing about how unique and essential this little gland is—the size of a pea, the pituitary runs almost
Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22, 2019 in New Orleans, Louisianna. “We are thrilled with this opportunity”, said
A recent New York Times Sunday Magazine article by Lisa Sanders M.D. featured PWN cofounder Lewis Blevins, M.D. and the experiences of one of his patients with an acromegaly diagnosis. The article “The Patient Had
From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on acromegaly clinical trials. As a patient leader, that runs a
From the desk of Linda M. Rio, M.A., Marriage and Family Therapist and PWN contributor. I recently met with someone diagnosed with a pituitary tumor who inspired me to write about this topic. I realize
From Linda M. Rio, Marriage and Family Therapist – So, what is the tipping point where the word “pituitary” will no longer have to be spelled-out and described in its most basic form? I just
In a fantastic photo exposition from our friends at the Spanish Acromegaly Association, Raquel Ciriza, and her team illustrate this point with stunning, beautiful visuals of people with Acromegaly. We don’t have to portrait Bond Villains,
Today the National Organization for Rare Disorders – NORD – issued a statement and provided a very useful explanation regarding the increasing use of copay accumulator programs in health plans. The NORD statement reads in part: “Recently,
Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News – I recently learned that substandard drugs for acromegaly and other pituitary disorders are alleged to be making their way
From JD Faccinetti, Co-founder, Chairman, and CEO – This year we participated in the World Alliance of Pituitary Organizations – WAPO 2018 – conference held recently in Venice, Italy. I’m happy to report on several initiatives. Our
The World Alliance of Pituitary Organizations (WAPO) recently published their first newsletter for 2018 with a bunch of interesting pituitary organization’s articles from around the world. Andrei Andrusov, WAPO Chairman of the Board reviews a process
From the desk of Linda M. Rio, M.A. – Marriage & Family Therapist – Last week I was feeling particularly “down”. You know, just one of those times. I had previously been asked to speak
From J D Faccinetti – Cofounder. This is a group of first-year medical students from the UC Berkeley-UCSF Joint Medical Program (JMP). I had the pleasure, as I’ve done every year since 2012, to meet