From Linda M. Rio, MA, Marriage and Family Therapist – I have written for PWN in previous articles on the impact of pituitary disease on the family and more recently on the importance of family and
Join our LIVE roundtable discussion on mental and emotional health Friday, July 9th, 2021, 9:00 am PST. Click here for more information and registration. There is no charge! By Erin Sesemann, Ph.D., LMFT, CBIS –
Pituitary World News has undertaken an initiative to understand and share the complicated issues related to access to medications and costs so pituitary patients can join us in advocating for better healthcare systems. In that mesh of confusion, we find insurance companies, orphan drug manufacturers, specialty pharmacies, pharmacy benefit managers, also known as PBM’s, prescribers, and others that add to the costs and complicate access. The issues get even murkier when considering patients on Medicare, Medicaid, pricing models, and copay requirements.
Acromegaly patients and healthcare providers worldwide can participate in this survey and provide updated information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
From J D Faccinetti and Lewis S Blevins, M.D. cofounders – Our focus today is on the effects of COVID-19 on pituitary patients’ access to, and utilization of healthcare as the pandemic continues to affect
Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor: In the awareness business, coming up with new, fresh, creative ideas is essential to get your message across,
Our friend and contributor, Dr. Chris Yedinak, Assistant Professor of Neurological Surgery, Division of Skull Base and Cerebrovascular at the NW Pituitary Center, Oregon Health & Sciences University, Portland OR, in conjunction with an international
From Linda M. Rio, MA, Marriage & Family Therapist – “The relevance for all of this for those diagnosed, or in the process of obtaining a diagnosis of pituitary disorder is that depression, anxiety, and other
Acromegaly patients and healthcare providers worldwide can participate in this survey designed to provide information that may help improve quality of life during the COVID-19 pandemic. Much of this initiative’s success will depend on your
Podcast and Survey: Clinical features of acromegaly. In this podcast, Dr. Blevins dives into those clinical features of Acromegaly with a fascinating discussion about symptoms and signs and gives us an unfettered glimpse into the
The CSRF has published materials from their recent Patient Journey Summit,”Defining the New Normal” The topics for the conference, held October 4-6, 2019 at Emory Conference Center Hotel in Atlanta, were organized by a patient-led group. The group
From the desk of Jorge D. Faccinetti, Pituitary World News co-founder – There seems to be a debate going on in the scientific and clinical pituitary world about what to call pituitary adenomas. The simple interpretation