Breakthrough symptoms & continued growth with controlled igf1. It probably ties into igf1 assays/variables not being reliable or checked as often as needed “Took me 12 years to find someone to remove mine because of
Today we discuss the findings of the recently conducted patient survey on telemedicine. The survey shed some light on critical patient perspectives and perceptions, to help us arrive at some initial conclusions, and identify areas
From Linda M. Rio, M.A., Marriage and Family Therapist and PWN contributor: Various terms seem to be used today but most frequently, “telehealth” or “telemedicine”, are used to describe live, real-time visits with a medical, mental health,
A current study from Tulane University is attempting to study aspects of the management of acromegaly patients and their perceptions of treatment. The study is being conducted by Dr. Lizheng Shi. Dr. Shi has been
From Linda M. Rio, M.A., Marriage & Family Therapist and PWN contributor “I’ve come to the conclusion that the way we engage with social media is like fire. You can use it to keep yourself
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient
From J D Faccinetti – cofounder. It is fun to think about complicated subjects particularly when those subjects include technology, medicine, and the mobile internet. As you ponder about change and what it means, it’s
From JD Faccinetti – cofounder – A recent A Monmouth University Polling Institute Survey conducted March 2 – 5 of 810 adults in the US, recently published in Endocrine News, showed that 51% of Americans prefer
From PWN founders Dr. Lewis Blevins and Jorge D. Faccinetti – Like all organizations, from time to time, we undertake planning and look to the future to create new innovative ways to get our message
From Jorge D Faccinetti, cofounder – Our recent One-Question survey on emotional and mental health got quite a bit of attention. Thank you to the many PWN readers who wrote and shared very personal, often
CLIK HERE TO DOWNLOAD THE “PATIENT VIEWS AND PERSPECTIVES” COMPILATION FROM PITUITARY WORLD NEWS. From Jorge D Faccinetti – co-founder Pituitary World News – Rare diseases, particularly those that come from the pituitary, are
Today we are starting a campaign to make sure all our readers diagnosed and living with acromegaly know their IGF-I levels. Make sure you ask your physician to tell you and please check your levels