Taking the bull by the horns

October 6, 2025
In 2019, when we first featured Risa's Story and plans to ride the Pacific coast highway - with full acromegaly symptoms, by the way - we opened the article with the "Taking the bull by the

Acromegaly: direct and personal

May 29, 2024
Life with acromegaly can be a daunting experience, especially if it's not diagnosed early and adequately. A whole set of related conditions can take hold, making everyday life a challenge, to say the least. A

A round-up of the latest news

April 10, 2024

Thanks to the lovely algorithms social media is using, we may only reach some of you with some posts, so here are a few of our latest articles and podcasts. We always encourage you to

Big news for acromegaly!

September 10, 2023

San Diego, California-based Crinetics Pharmaceutical announced today that its novel investigational drug paltusotine maintained IGf-1 levels in patients who switched from monthly injectables

Online behavior: another concerning look

July 10, 2023

In a recent JAMA Network article covering the COVID-19 pandemic, 23.3% of physicians reported personal attacks on social media.  Online bullying and social media harassment are nothing new, but this behavior, plus considerable misinformation, makes disseminating helpful, accurate content an ongoing challenge.  

Rare Disease Day

February 27, 2022

On February 28, many organizations that advocate for cures, therapies, drugs, and critically early diagnosis for the known 7000 plus rare diseases join forces to focus on rare diseases. We support rarediseaseday.org and the many