News and information for patients.
The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news. If you have acromegaly, have a family member that suffers
If you missed it, no worries! Here it is. Listen to Linda Rio and Dawn Herring as they discuss emotional and mental health in pituitary disease. Don’t miss this compelling and highly personal discussion from
Pour yourself a cup of coffee and join us LIVE on Friday, July 9th from 9:00 to 10:30 am, PST, (12:00 to 1:30 pm, EST) for our first LIVE virtual Pituitary World News Roundtable –
If you missed this fantastic event, here is an on-demand video you can watch at your leisure. In this second installment of the Ionis’ Rare Disease Webinar series, panelists discuss acromegaly, a condition in which
On Cushing’s Day, we share Sharmyn McGraw’s blog on her journey with the disease. From her Blog – “Now twenty-one years in remission from a pituitary adenoma tumor, Sharmyn McGraw, patient advocate, author, artist, and
The Pacific Neuroscience Institute is celebrating 20 years of their pituitary patient support group! Ever since April 2001, when the first meeting was held, the institute, with Sharmyn McGraw’s help, has been conducting patient support
From the desk of J D Faccinetti, co-founder – The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of pituitary disease through a “mapping project” that asks member organizations to
From Jorge D Faccinetti, co-founder – Today is Rare Disease day. It is encouraging and gratifying to see the many organizations that participate by acknowledging the day. Thank you for mentioning Rare Disease Day in
From our friends at UCSF: Read this great update with links to articles on telemedicine for patients with pituitary disorders, making surgery safer during the Covid-19 pandemic, common mistakes made when treating patients with central hypothyroidism,
From Lewis S Blevins, Jr., M.D. – Today on Dr. Blevins’ Corner: An elderly man underwent removal of the thyroid gland many years ago due to an overactive thyroid as a result of a goiter. He
Joining a new drug trial, for example, is an action that can benefit many affected with a disease, particularly with a rare disease, where finding enough people for an adequate sample is very challenging.
From the desk of Linda M. Rio, MA, MFT – Marriage and Family Therapists and PWN contributor – Hope, in such a year as unique as 2020 is a more important word than ever not only for