With the lead line of “There is more to my acromegaly than just numbers on a page” comes a new informational website from the Chiesi Global Rare Diseases patient support group. Rethink Acromegaly is a
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
Helping to educate tomorrow’s doctors.
From J D Faccinetti – Shortly after my acromegaly treatment had begun in 2011, I got a call from my friend and now Pituitary World News partner Dr. Lewis Blevins. He had given my name
Inaccessible residual growth hormone producing pituitary adenoma
From Lewis S. Blevins Jr. MD – This person has residual growth hormone producing pituitary adenoma that was inaccessible to the surgeon via the transsphenoidal route. I must say, however, that about 90 to 95%
News on Acromegaly from the Endocrine Society
Experts Recommend Tumor Removal as First-Line Treatment for Acromegaly. Endocrine society publishes Clinical Practice Guidelines on condition caused by excess growth Hormone. View a PDF of the guidelines here Washington, DC—The Endocrine Society today issued
Acromegaly and Bone Disease
From Lewis S. Blevins, Jr., MD – “This is a nice review highlighting bone disease in patients with acromegaly. One would think that bone enlargement would be associated with increased strength. That is not always
Acromegaly: Postoperative Evaluation.
From Lewis S Blevins Jr,. MD – My approach to the postoperative evaluation of patients with acromegaly is based on over a quarter of a century of experience evaluating and treating patients with the disorder.
Pituitary Surgery. Postoperative Followup.
From Lewis S Blevins, Jr. MD – All too often, I see patients who come to the clinic with devastating recurrences of their pituitary tumors. For example, the accompanying MRI depicts a recurrent pituitary tumor in
From Pituitary World News co-founder, J D Faccinetti
My Story. I was diagnosed with Acromegaly in October 2010. My condition, like many, if not most, of the stories I read and hear about, was missed for many years. In my case, doctors estimated
Tests of pituitary function: acromegaly
From Dr. Lewis Blevins. Growth Hormone is secreted in pulses, usually 9-12 per 24-hour period, and most of these occur at night while we are sleeping. In normal adults, growth hormone levels are undetectable 50%
Pituitary tumors and heredity
Some pituitary tumors occur as a result of heritable conditions. Dr. Korbonits and her group have remarkably advanced our understanding of the genetics of inherited pituitary disorders. She has elucidated the genetic cause of acromegaly