Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
I recently had the pleasure of meeting Camurus CEO Fredrik Tiberg. We initially connected on a Zoom call and later met at the European Endocrine Conference held in Copenhagen, Denmark in May. We agreed to meet in person, learn more about the company and record a podcast.
Being Rare From Dan Jeffries, writer, author – “It might sound a little perverse, but I feel almost lucky to have experienced two rare medical conditions in my life. The first was Wyburn-Mason syndrome, a
Don’t miss Radio personality, acromegaly patient, and co-host of the popular Miami Elvis Duran and the Morning Show, Froggy’s live panel discussion for acromegaly patients and caregivers. The program will take place on Froggy’s Facebook page, on October
In today’s podcast Dr. Lewis Blevins reviews and summarizes information on the usage of Somatostatin Analogues in the treatment and management of acromegaly.
From J D Faccinetti, cofounder – Last week the BBC World Service radio network broadcasted a story about an acromegaly patients’ diagnosis experience. I found it fascinating first because it is not every day we hear a
From the Pacific Neuroscience Institute, Sharmyn McGraw sends us this article in which she asked leaders of various pituitary organizations, including Pituitary World News, their opinions on the biggest obstacles facing acromegaly patients. From Sharmyn McGraw: As a
In this podcast, Dr. Blevins gives us an overview of the drug Pasireotide for Cushing’s. Photo by: JD Faccinetti (close up at the California Redwoods forest) Music by: Bad at Math
An effort is under way to enable Acromegaly patients and doctors to make congress more aware of the needs of patients suffering from this disease. More details on this effort will be forthcoming soon. One
Today we begin a new series of feature articles that highlight the tireless work that people do to help others. Here are three amazing human beings: Jill Sisco runs the Acromegaly Community website and
Today we are starting a campaign to make sure all our readers diagnosed and living with acromegaly know their IGF-I levels. Make sure you ask your physician to tell you and please check your levels
In this podcast, Dr. Lewis Blevins discusses the medical management of acromegaly with the drug “pegvisomant for injection” or Somavert. This is our third podcast in a series of six on acromegaly and its management.
Our discussion today focuses on the results of our recent acromegaly survey. This survey was intended for those patients who have been diagnosed with acromegaly based on clinical biochemical and radiographic features.
In this podcast Dr. Blevins discusses aggressive pituitary tumors. Learn what defines a pituitary malignancy and the differences between benign and malignant tumors. What is an aggressive tumor and what makes it behave that way.