News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
One of the most valuable things you can do to help the pituitary community is share your own experience. What you have lived through helps others understand the realities of living with acromegaly, or any other disease. It helps clinicians see challenges that never show up in a lab result and helps make sure that programs and services are built on patients needs. Taking part in research and using your voice is one of the most direct ways to do that.
Don’t miss this informative webinar from The World Alliance of Pituitary Organizations – WAPO – on ‘Patient registries’, and The European Register on Cushing’s Syndrome – ‘ERCUSYN’. The webinar will be moderated by WAPO members Sheila
From the desk of J D Faccinetti, co-founder – Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness and reduce the time to diagnosis; that’s the best way I
Madrid, Spain: J D Faccinetti reporting. The Spanish Association of People affected by Acromegaly has a full schedule for this week’s conference in Madrid packed with a ton of information and help for patients. “We are delighted
From our friends in Ecuador, Margarita Vasques Amoroso sends us information on their monthly meetings. Specialist and patients gather periodically to chat, exchange experiences and valuable information on pituitary disease management. The latest meetings focused
Today we take a quick look at the Pituitary Community South Africa and their efforts to inform and educate on pituitary disease. This an organization dedicated to raising awareness of pituitary tumors and related conditions. Their focus
The Spanish Association of People affected by Acromegaly is holding their annual conference September 15th in Madrid, Spain. Pituitary World News will share experiences and best practices to increase awareness of Pituitary disease worldwide. This
Leading Argentine patient advocacy group APEHI (Ayuda a Pacientes con Enfermedades Hipofisarias) -loosely translated “Help for Patients with Pituitary Disease” – recently conducted a study to gain more knowledge about people with pituitary disease in
For those of you who speak French and are interested in existing efforts to increase awareness of acromegaly around the globe, this is the work of a French patient association with volunteer members who have acromegaly, and
In a fantastic photo exposition from our friends at the Spanish Acromegaly Association, Raquel Ciriza, and her team illustrate this point with stunning, beautiful visuals of people with Acromegaly. We don’t have to portrait Bond Villains,
Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News – I recently learned that substandard drugs for acromegaly and other pituitary disorders are alleged to be making their way
Desde el escritorio de J D Faccinetti Cofundador y presidente de Pituitary World News – Recientemente descubrí que, según se afirma, algunos medicamentos deficientes para la acromegalia y otros trastornos de la hipófisis se están
From JD Faccinetti, Co-founder, Chairman, and CEO – This year we participated in the World Alliance of Pituitary Organizations – WAPO 2018 – conference held recently in Venice, Italy. I’m happy to report on several initiatives. Our