From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
Making a difference
May 9, 2017
From Jorge D Faccinetti – cofounder Pituitary World News – In today’s podcasts we talk with Jill Sisco president of the Acromegaly Community, a leading acromegaly patient support group. Our candid discussion centers around patient support,
Pituitary adenomas
May 6, 2017
Today’s podcast is the first in an upcoming series of podcasts dedicated to pituitary lesions, with particular attention to pituitary adenomas. Dr. Blevins covers a variety of subjects including symptoms and signs, classification and groups,
Acromegaly: A discussion on medical management and drug combination therapies.
May 3, 2017
From J D Faccinetti – cofounder – Recent news coverage from the Endocrine Society Annual Meeting features comments from Maria Fleseriu, MD, FACE, professor of medicine and neurological surgery at Oregon Health & Science University,
Ancient Peru, Incas and acromegaly
April 10, 2017
As some of you may know, my first cousin Carol Mackie Passera, who lives in the Patagonia region of Argentina and who developed acromegaly about the same time I did (read more here), runs a
More on the genetics of acromegaly
March 23, 2017
From Jorge D. Faccinetti – co-founder – The Journal Pituitary published an article on the genetic background of acromegaly. The Authors, Mônica R. Gadelha, Leandro Kasuki and Márta Korbonits provide a great summary of current knowledge in the genetics of this disease. Read
Pseudo-acromegaly: a few comments
February 27, 2017
From the desk of Lewis S Blevins Jr. MD – cofounder. I’m not sure this term really exists. It does, however, seem to be rather fitting at times. I encounter patients who look acromegalic but
One person’s POV: The new Somavert delivery system
February 10, 2017
From J D Faccinetti, cofounder: The endocrine team at Pfizer delivered some very smart changes to the Somavert injection delivery system, now with a diluent prefilled syringe. If you use Somavert let us know your
From the European Society of Endocrinology: a pituitary update
December 9, 2016
The European Society of Endocrinology recently published a pituitary update with several interesting presentations. Of particular note, for those of you interested in the genetics of acromegaly, is a presentation by Albert Beckers a Belgian
Discussing the rationale for Pegvisomant dose adjustments
December 7, 2016
Listen to this engaging podcast where PWN cofounders Dr. Blevins and JD Faccinetti discuss the ins and outs of a Somavert (pegvisomant for injection) dose adjustment based on a recent case. . Don’t miss it!
Drugs used in the medical treatment of Acromegaly
November 2, 2016
In this podcast Dr Blevins discussed the drugs used to treat Acromegaly. Among other things, he discusses his perspectives for the proper selection of different drugs. Read more about Acromegaly and review the articles and
Acromegaly awareness day is November 1
October 24, 2016
And to mark the occasion we thought it would be fun to participate in the “A Day in my Acromegaly Shoes” initiative. This is a fun program sponsored by Novartis, designed to increase awareness of Acromegaly.
Dan Jeffries: An insightful and hilarious patient memoir
October 17, 2016
Being Rare From Dan Jeffries, writer, author – “It might sound a little perverse, but I feel almost lucky to have experienced two rare medical conditions in my life. The first was Wyburn-Mason syndrome, a