Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
In the latest episode of the Pituitary World News podcast, Jorge D. Faccinetti sits down with Dr. Markus Johnsson, Senior VP of R&D at Camurus, to explore the fascinating world of FluidCrystal® technology. This innovative approach promises to revolutionize the way we think about drug delivery, providing long-lasting solutions for chronic diseases particularly for people with acromegaly.
Patient advocates and PWN panel Q & A session: Santino Santino Matrundola, Dan Jeffries and JD Faccinetti answer questions from the floor about living with acromegaly, advocacy, memoir writing and more. The Canadian National Acromegaly patient
Here’s how you can get involved: Awareness is important because it is through awareness that we can influence change. Awareness can have a critical impact on the amount of time it takes to diagnose the
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person
From J D Faccinetti – cofounder. In what is sure to be the first of many, Canada’s acromegaly community gathered in Vancouver for a two-day session filled with community, activity, and information. Patients, pituitary specialists,
Read this series of articles on subjects of interest to pituitary patients, their families and physicians including the patient’s perspective on diagnosis, rheumatic and bone disorders, undetected pituitary tumors, and mild traumatic brain injuries and pituitary
From Jorge D Faccinetti – cofounder Pituitary World News – In today’s podcasts we talk with Jill Sisco president of the Acromegaly Community, a leading acromegaly patient support group. Our candid discussion centers around patient support,
Today’s podcast is the first in an upcoming series of podcasts dedicated to pituitary lesions, with particular attention to pituitary adenomas. Dr. Blevins covers a variety of subjects including symptoms and signs, classification and groups,
From J D Faccinetti – cofounder – Recent news coverage from the Endocrine Society Annual Meeting features comments from Maria Fleseriu, MD, FACE, professor of medicine and neurological surgery at Oregon Health & Science University,
As some of you may know, my first cousin Carol Mackie Passera, who lives in the Patagonia region of Argentina and who developed acromegaly about the same time I did (read more here), runs a
From Jorge D. Faccinetti – co-founder – The Journal Pituitary published an article on the genetic background of acromegaly. The Authors, Mônica R. Gadelha, Leandro Kasuki and Márta Korbonits provide a great summary of current knowledge in the genetics of this disease. Read
From the desk of Lewis S Blevins Jr. MD – cofounder. I’m not sure this term really exists. It does, however, seem to be rather fitting at times. I encounter patients who look acromegalic but
From J D Faccinetti, cofounder: The endocrine team at Pfizer delivered some very smart changes to the Somavert injection delivery system, now with a diluent prefilled syringe. If you use Somavert let us know your