From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.
From the desk of J D Faccinetti – co Founder and chief editor – Today, I am pleased to share two new excellent resources from Crinetics Phamaceuticals: AcromegalyReality.com – This newly launched site offers support
From the desk of contributor Linda M. Rio, M.A. Marriage and Family Therapist – Pituitary World News editor, J D Faccinetti, recently published an article that hit a nerve with me. I called him to let
From PWN Co-founder J D Faccinetti – In a recent paper from the National Academies of Science of the United States of America, “The spreading of misinformation online”the authors made quite a dire statement. “Digital
Today we discuss the findings of the recently conducted patient survey on telemedicine. The survey shed some light on critical patient perspectives and perceptions, to help us arrive at some initial conclusions, and identify areas
A commentary by J D Faccinetti cofounder– In this day and age of hyper communications, internet speed, ultra-connected populations, and copious amounts of easily accessible content, bad information is rampant. That’s a problem. A big
From the desk of J D Faccinetti, co-founder – Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness and reduce the time to diagnosis; that’s the best way I
Madrid, Spain: J D Faccinetti reporting. The Spanish Association of People affected by Acromegaly has a full schedule for this week’s conference in Madrid packed with a ton of information and help for patients. “We are delighted
From the desk of JD Faccinetti co-founder – On behalf of Dr. Lewis Blevins and myself, a big thank you to Engage Health for recognizing Pituitary World News as a Rare Disease Difference Maker™. The program recognizes individuals who
Interesting information and news for people living and dealing with pituitary conditions. Leptin: According to experts increasing Leptin sensitivity may help in weight loss. There is still much research needed to understand the puzzle that enables leptin
Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22, 2019 in New Orleans, Louisianna. “We are thrilled with this opportunity”, said
There is quite a bit of noise out there about Gene Therapy. What it is, how it works, what can it actually do? Some of the information is very good, some, not so good.
From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on acromegaly clinical trials. As a patient leader, that runs a