The latest WAPO Blogs and Vlogs series features professor Márta Korbonits, from the Barts and London School of Medicine at Queen Mary University of London. Dr Korbonits is a world renowned authority in the genetics
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
Real life stories told by people living with Acromegaly
February 27, 2020
A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest project. He told me he started AcroTales to encourage people to share their
4. Podcast series “the journey to a new drug”: understanding molecules and receptors
February 14, 2020
This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder at Crinetics Pharmaceutical. Our discussion spotlights new drugs for acromegaly, Cushing’s,
Canada 2019 International Conference Videos available for viewing
February 4, 2020
As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions. If you have acromegaly, have a family member that suffers from the disease, or you are a healthcare
3. Giving patients a place at the table
January 31, 2020
The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs, preferences, and attitudes, and to develop insights that would result in
World Alliance of Pituitary Organizations: December 2019 Newsletter
December 27, 2019
Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. [maxbutton id=”2″ ] Through WAPO, patient advocacy organizations share information, best practices
PWN at Spain’s 2019 Endocrinology Society Congress
December 20, 2019
From the desk of Jorge D Faccinetti, co-founder – The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their annual conference – Congreso, in Spanish – this past October in Bilbao,
Will we ever be able to use stem cells to regenerate the pituitary gland?
December 5, 2019
A commentary from Dr. Lewis S Blevins Jr. co-founder – I was recently asked if I felt that we would ever be able to use stem cells to regenerate the pituitary gland. Frankly, the answer is
Raising GP’s Awareness in Diagnosing Cushing’s
October 25, 2019
From the Pituitary Foundation in the UK, a Cushing’s awarenesses initiative targeting primary care physicians (GP’S). For October Cushing’s awareness activities, the Pituitary Foundation in the UK has launched a campaign focused on GP’s (General Practitioners).
From the Spanish Association of People Affected by Acromegaly
October 24, 2019
November 1 is World Acromegaly Day! This fun video from the Asociacion Española de Afectados por Acromegalia is a great way to explain the causes and get more details on this disease. Excellent work from
WAPO participates in Cushing’s Patient Journey Summit 2019
October 3, 2019
The World Alliance of Pituitary Organizations (WAPO) will participate in the upcoming Cushing’s Support and Research Foundation (CSRF) conference slated for October 4 to 6 in Atlanta, Georgia. Muriel Marks, WAPO’s Executive Director, will present
From Spain: A story of a pharmacist and acromegaly
September 8, 2019
From the desk of J D Faccinetti – cofounder. We often scan the world for compelling stories that broaden the awareness of pituitary disease and do it well. This one comes from Raquel Ciriza, the president
Important healthcare public policy work in Ecuador
August 8, 2019
This initiative comes from Margarita Vasquez, from FAETH (Fundacion de Apoyo a Enfermos con Transtornos Hipofisiario), an Ecuadorian foundation and WAPO member, that supports patients with pituitary disease. In this initiative, the rare disease community in