Listen to this informative podcast with Ren Renwick, CEO of the Pituitary Foundation in the United Kindom. The foundation is a leading volunteer organization providing a variety of resources and support functions for people with pituitary disease.
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
The critical need for adrenal insufficiency awareness
May 29, 2020
If you’d like to learn more about Addison’s disease, here’s a perfect opportunity to do so. The Advanced Practice in Endocrinology Nursing is a comprehensive resource on Adrenal Insufficiency and three chapters from the book are
Managing stress and emotional well being
May 27, 2020
The Chilean pituitary patient advocacy group, Corapehi presents information on the use of traditional Chinese medicine techniques to aid in managing stress and improve emotional well being. The presentation is slated for this Saturday, May
From the European Society of Endocrinology: Cushing’s syndrome clinical management guidance during the COVID-19 Pandemic
April 25, 2020
This is a series of urgent clinical guidance documents on the management of endocrine conditions in the time of COVID-19. This clinical guidance document underwent expedited open peer review by Jérôme Bertherat (Paris, France), André
Critical COVID-19 information for pituitary patients
April 18, 2020
We caught up with Dr. Kevin Yuen, medical director of the Barrow Pituitary Center and the Barrow Neuroendocrinology Clinic in Phoenix, Arizona, and Dr. Lewis Blevins Medical Director of the California Center for Pituitary Disorders at
Things to think about: Coming up on Pituitary World News
April 14, 2020
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media
The World Alliance of Pituitary Organizations – April 2020 Newsletter
April 13, 2020
WAPO’s Global Pituitary Voice – April 2020 edition – is now available to download. This newsletter is being released in the midst of the COVID-19 pandemic, which forced the postponement of the WAPO Summit to
Exciting news for acromegaly and NET’s from Crinetics Pharmaceuticals!
April 9, 2020
In a press release today, San Diego, California based Crinetics Pharmaceuticals reports positive results from their Phase Two trial of PALTUSOTINE (the former CRN00808). This is a new oral medication to treat acromegaly and neuroendocrine
News on Signifor, Signifor LAR, and newly approved Cushing’s drug ISTURISA
April 8, 2020
Recordati Rare Diseases, Inc., based in Lebanon, NJ, has recently acquired the rights to SIGNIFOR® LAR and the FDA approval for ISTURISA®(osilodrostat). Both products treat pituitary diseases. SIGNIFOR LAR, a “2nd generation” somatostatin analog given
Are we over reacting? Some people think so.
March 18, 2020
This article caught my attention since so much of what we do today is based on big data. This coronavirus situation is no different. In the article John P.A. Ioannidis – professor of medicine, of
Opinion: The Pandemic of Poor Communications
March 6, 2020
At the risk of adding to the Coronavirus news frenzy we’re experiencing, I thought this piece from Gil Bashe, a health communication writer, deserved to be noted. His article points to the substandard job the health
Real life stories told by people living with Acromegaly
February 27, 2020
A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest project. He told me he started AcroTales to encourage people to share their
4. Podcast series “the journey to a new drug”: understanding molecules and receptors
February 14, 2020
This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder at Crinetics Pharmaceutical. Our discussion spotlights new drugs for acromegaly, Cushing’s,