WAPO Blogs and Vlogs offers an excellent resource for information related to pituitary diseases, including general medical information as well as the recordings of webinars and presentations. Search through the WAPO library for updated information
News From Around the World
News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.
How do muscles change?
Note: Muscle weakness affects the quality of life in people with acromegaly. Doctora Elena Valassi takes a fascinating look at what happens to muscles when exposed to excess Growth Hormone. Her work is of paramount
The critical need for adrenal insufficiency awareness
If you’d like to learn more about Addison’s disease, here’s a perfect opportunity to do so. The Advanced Practice in Endocrinology Nursing is a comprehensive resource on Adrenal Insufficiency and three chapters from the book are
Managing stress and emotional well being
The Chilean pituitary patient advocacy group, Corapehi presents information on the use of traditional Chinese medicine techniques to aid in managing stress and improve emotional well being. The presentation is slated for this Saturday, May
From the European Society of Endocrinology: Cushing’s syndrome clinical management guidance during the COVID-19 Pandemic
This is a series of urgent clinical guidance documents on the management of endocrine conditions in the time of COVID-19. This clinical guidance document underwent expedited open peer review by Jérôme Bertherat (Paris, France), André
Critical COVID-19 information for pituitary patients
We caught up with Dr. Kevin Yuen, medical director of the Barrow Pituitary Center and the Barrow Neuroendocrinology Clinic in Phoenix, Arizona, and Dr. Lewis Blevins Medical Director of the California Center for Pituitary Disorders at
Things to think about: Coming up on Pituitary World News
From J D Faccinetti – co-founder – One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that is, deciding what to write and when to publish. The media
The World Alliance of Pituitary Organizations – April 2020 Newsletter
WAPO’s Global Pituitary Voice – April 2020 edition – is now available to download. This newsletter is being released in the midst of the COVID-19 pandemic, which forced the postponement of the WAPO Summit to
Exciting news for acromegaly and NET’s from Crinetics Pharmaceuticals!
In a press release today, San Diego, California based Crinetics Pharmaceuticals reports positive results from their Phase Two trial of PALTUSOTINE (the former CRN00808). This is a new oral medication to treat acromegaly and neuroendocrine
News on Signifor, Signifor LAR, and newly approved Cushing’s drug ISTURISA
Recordati Rare Diseases, Inc., based in Lebanon, NJ, has recently acquired the rights to SIGNIFOR® LAR and the FDA approval for ISTURISA®(osilodrostat). Both products treat pituitary diseases. SIGNIFOR LAR, a “2nd generation” somatostatin analog given
Are we over reacting? Some people think so.
This article caught my attention since so much of what we do today is based on big data. This coronavirus situation is no different. In the article John P.A. Ioannidis – professor of medicine, of
Opinion: The Pandemic of Poor Communications
At the risk of adding to the Coronavirus news frenzy we’re experiencing, I thought this piece from Gil Bashe, a health communication writer, deserved to be noted. His article points to the substandard job the health
Real life stories told by people living with Acromegaly
A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest project. He told me he started AcroTales to encourage people to share their